系统性红斑狼疮患者疾病接受度和生活质量的相关性及人文关怀策略  

Humanistic Care Strategy and Correlation between Acceptance of Disease and Quality of Life in Patients with Systemic Lupus Erythematosus(SLE)

作　　者：屈莉[1] 石昊羽 吴含雪 王维霞[1] 陈静[1] 杨静[1] 李学义 QU Li;SHI Haoyu;WU Hanxue;WANG Weixia;CHEN Jing;YANG Jing;LI Xueyi(Department of Rheumatology,The Second Affiliated Hospital of Xi’an Jiaotong University,Xi’an 710004,China;Xi’an Jiaotong University Health Science Center, Xi’an 710004,China)

机构地区：[1]西安交通大学第二附属医院风湿免疫科,陕西西安710004 [2]西安交通大学医学部,陕西西安710061

出　　处：《中国医学伦理学》2020年第11期1377-1384,共8页Chinese Medical Ethics

基　　金：陕西省重点研发计划“授权赋能式健康教育对强直性脊柱炎患者自我效能的影响研究”(2020SF-078);西安交通大学第二附属医院院基金“系统性红斑狼疮患者疾病接受度与生活质量相关性研究”[YJ(HL)202001]。

摘　　要：为了探究系统性红斑狼疮(SLE)患者的疾病接受程度,分析影响患者生活质量的相关因素,探讨针对性的人文关怀策略,对患者采用世界卫生组织生活质量测定量表简表(WHOQoL-BREF)、中文版疾病接受度量表(AIS-CHI)和SLE患者一般情况和疾病情况调查表进行调查,并作相关分析,结果发现SLE患者的疾病接受度评分为(20.33±7.44)分。生活质量评分:综合得分(75.38±11.936),生理领域(50.75±16.861),心理领域(53.36±16.703),社会关系领域(57.95±15.095),环境领域(55.34±44.810)。SLE患者疾病接受度属于中等程度,且与患病后生活质量之间存在显著正相关(r=0.432,P<0.001)。因此,建议医务人员应该重视患者的疾病接受度和患病后生活质量,并根据患者的实际情况,给予有针对性的人文关怀策略和有效的心理干预措施,以提高SLE患者的心理健康水平和生活质量。To explore the disease acceptance of Systemic Lupus Erythematosus(SLE)patients and the related factors which affecting the quality of life of patients,so as to explore the targeted humanistic care strategies for SLE.According to the World Health Organization Quality of Life Measurement Scale(WHOQoL-BREF),the Chinese version of Disease acceptance Scale(AIS-CHI)and Questionnaire for general information and disease situation in SLE patients.The acceptance of disease SLE in patients was moderate,with a score of(20.33±7.44)points.Quality of life score:comprehensive score(75.38±11.936),physiological domain(50.75±16.861),psychological domain(53.36±16.703),social relations domain(57.95±15.095),environmental domain(55.34±44.810).There was a positive correlation between acceptance of disease and quality of life(r=0.432,P<0.001).Medical staff should pay more attention to the acceptance of disease and quality of life in SLE patients.Appropriate humanistic care strategies and effective psychological intervention measures should be provided according to the actual situation of patients,to improve the mental and physical health of SLE patients.

关 键 词：系统性红斑狼疮 生活质量 疾病接受度 人文关怀 

分 类 号：R-052[医药卫生]