英国“专家患者计划”及其对我国赋权慢性病患者的启示  

Research on British “Expert Patient Program” and Its Enlightenment to Empower Chronic Disease Patients in China

作　　者：张艳双 张宇萌 张琳琳[2] 王倩文[1] 张雪[1] ZHANG Yanshuang;ZHANG Yumeng;ZHANG Linlin;WANG Qianwen;ZHANG Xue(College of Humanities and Social Sciences,Harbin Medical University,Harbin 150081,China;School of Daqing, Harbin Medical University, Daqing 163319,China)

机构地区：[1]哈尔滨医科大学人文社会科学学院,黑龙江哈尔滨150081 [2]哈尔滨医科大学大庆校区,黑龙江大庆163319

出　　处：《中国医学伦理学》2021年第5期577-580,共4页Chinese Medical Ethics

基　　金：黑龙江省高等教育教学改革项目课题“融合式教学模式在医学人文教育中的研究与实践”(SJGY20180315);哈尔滨医科大学大学生创新创业项目“黑龙江省公立三甲医院医生对患者安全文化认知研究”(201710226015)。

摘　　要：近年来,慢性病已经成为影响全球居民生活质量、健康水平、社会经济的重大公共卫生和社会问题。赋予慢性病患者权能可增强患者战胜疾病的信心,提高患者健康决策制定能力、主观能动性和健康责任感,改善医患关系。从专家患者计划内涵入手,介绍专家患者政策支持、实施措施、存在的问题,在此基础上对其进行本土化研究,提出慢性病医疗服务机构信息化建设、建立慢性病共享信息平台等建议,以期为中国赋权慢性病患者理论与实践提供有益参考。In recent years, chronic disease management has become a major public health and social problem affecting the quality of life, health level and social economy of global residents. Empowerment of patients with chronic diseases can enhance the confidence of patients to overcome the disease, improve their health decision-making ability, subjective initiative and sense of health responsibility, and affect the doctor-patient relationship. Starting from the connotation of the expert patient plan, this paper introduced the policy support, implementation measures and existing problems of the expert patient plan. On this basis, it put forward some suggestions on the localization of the expert patient plan, such as the information construction of chronic disease medical service institutions and the establishment of chronic disease sharing information platform, so as to provide a useful reference for the theory and practice of empowering chronic disease patients in China.

关 键 词：赋权患者 专家患者计划 医患关系 慢性病共享信息平台 

分 类 号：R197.32[医药卫生—卫生事业管理]