青少年白血病幸存者心理韧性现状及影响因素分析  

Current status and influencing factors of psychological resilience in adolescent leukemia survivors

作　　者：李慧君[1] 王旭梅[2] 吴心怡[1] 曲京霞[3] 许晓敏 Li Huijun;Wang Xumei;Wu Xinyi;Qu Jingxia;Xu Xiaomin(Nursing Department,National Center for Children's Health&Beijing Children's Hospital,Capital Medical University,Beijing 100045,China;Department of Endocrinology,Genetics and Metabolism,National Center for Children’s Health&Beijing Children’s Hospital,Capital Medical University,Beijing 100045,China;First Department of Hematology y Genetics and Metabolism,National Center for Children's Health&Beijing Children's Hospital,Capital Medical University,Beijing 100045,China)

机构地区：[1]国家儿童医学中心首都医科大学附属北京儿童医院护理部,100045 [2]国家儿童医学中心首都医科大学附属北京儿童医院内分泌遗传代谢科,100045 [3]国家儿童医学中心首都医科大学附属北京儿童医院血液一科,100045

出　　处：《中华现代护理杂志》2021年第25期3432-3437,共6页Chinese Journal of Modern Nursing

基　　金：2018年北京市中医药科技发展资金项目护理专项(JJ2018-67)。

摘　　要：目的探讨青少年白血病幸存者心理韧性状况,并分析其影响因素。方法采用便利抽样法,选取2018年10月-2020年8月首都医科大学附属北京儿童医院常规返院随诊及白血病患儿停药随访群内的青少年白血病幸存者为研究对象。采用一般资料调查表、青少年心理韧性量表、一般自我效能感量表对青少年白血病幸存者进行调查。本研究共发问卷110份,收回有效问卷106份,有效回收率96.36%。结果106例青少年白血病幸存者心理韧性总分(97.83±14.93)分。多重线性回归分析结果显示,疾病危险度、停药时长、一般自我效能感是青少年白血病幸存者心理韧性的影响因素(P<0.05)。结论青少年白血病幸存者心理韧性水平处于中上水平,医务人员及青少年白血病幸存者的家人、朋友应对疾病危险度为中、高危或停药时长<5年的幸存者给予积极关注,为其提供更多的支持与帮助;同时关注幸存者一般自我效能感状况,提供针对性的自我护理指导或为康复者重返学校、社会提供实质性帮助,以改善其心理韧性水平。Objective To explore the psychological resilience of adolescent leukemia survivors and analyze its influencing factors.Methods From October 2018 to August 2020,convenience sampling was used to select adolescent leukemia survivors in the routine follow-up group and follow-up group for children with leukemia who stopped taking medication in Beijing Children's Hospital affiliated to Capital Medical University as the research object.The General Information Questionnaire,Resilience Scale for Chinese Adolescents,and the General Self-Efficacy Scale were used to investigate adolescent leukemia survivors.A total of 110 questionnaires were issued,and 106 valid questionnaires were returned,with the effective response rate of 96.36%.Results Among 106 adolescent leukemia survivors,the total score of psychological resilience was(97.83±14.93).The results of multiple linear regression analysis showed that disease risk,duration of drug withdrawal,and general self-efficacy were the influencing factors of psychological resilience in adolescent leukemia survivors,and the difference was statistically significant(P<0.05).Conclusions The psychological resilience level of adolescent leukemia survivors is at an upper-middle level.Medical and nursing staff,the family and friends of adolescent leukemia survivors should pay active attention to survivors whose disease risk is medium or high risk or whose duration of drug withdrawal is less than 5 years,and provide them with a lot of support and help.At the same time,pay attention to the general self-efficacy of survivors,provide targeted self-care guidance or substantive help for the survivors to return to school and society so as to improve their psychological resilience.

关 键 词：白血病 青少年 幸存者 心理韧性 影响因素 

分 类 号：R473.73[医药卫生—护理学]