社会支持在老年帕金森病患者主要照顾者照顾负担与生活质量间中介效应的临床研究  

Clinical study on the mediating effects of social support on the burden of primary caregivers for Parkinson's patients and their quality of life

作　　者：孙羽[1] 李军莉 高会莹 周倩[1] 杨静[1] 高西美[1] Sun Yu;Li Junli;Gao Huiying;Zhou Qian;Yang Jing;Gao Ximei(Department of International Medical Services,Qilu Hospital of Shandong University,Ji'nan 250012,China)

机构地区：[1]山东大学齐鲁医院国际医疗部,济南250012

出　　处：《中华老年医学杂志》2022年第3期266-270,共5页Chinese Journal of Geriatrics

摘　　要：目的探讨老年帕金森病患者照顾者负担,并分析社会支持在老年帕金森病患者主要照顾者照顾负担与生活质量之间的中介效应。方法横断面研究,采用便利抽样方法对2021年1-5月在山东大学齐鲁医院神经内科门诊就诊的老年帕金森病患者的主要照顾者281人进行问卷调查,有效问卷242份(86.1%)。应用中文版照顾负担问卷、社会支持评定量表、简明健康调查表SF-36进行问卷调查,对调查结果采用Pearson相关分析,构建社会支持在PD患者照顾者照顾负担与生活质量间的结构方程模型,中介效应检验应用Process V2.16.3插件进行分析,并采用验证性统计分析软件AMOS进行再次验证。Bootstrap方法检验中介效应。结果主要照顾者照顾负担得分为(26.9±23.1)分、社会支持得分为(40.5±8.7)分、生活质量得分为(593.7±163.3)分。照顾者负担与社会支持呈负相关(r=-0.482,P<0.01),社会支持与生活质量呈正相关(r=0.513,P<0.01);照顾者负担与生活质量呈负相关(r=-0.654,P<0.01)。中介效应验证结果显示,照顾负担对生活质量影响的直接效应(95%CI:-0.38~-0.61)及社会支持的中介效应(95%CI:-0.08~-0.21)不包含0,表明老年PD患者主要照顾者照顾负担不仅能预测生活质量,亦能够通过社会支持的中介作用预测其生活质量(直接效应为-0.50,中介效应为-0.14,占总效应-0.64的78.0%、22.0%)。结论影响老年帕金森病患者主要照顾者生活质量的主要因素为照顾负担和社会支持,减轻主要照顾负担既可作用其生活质量,亦可通过增加社会支持对生活质量产生间接的影响。Objective To examine the burden of caregivers for elderly Parkinson's patients(PD)and to analyze the mediating effects of social support on primary PD caregivers'burden and their quality of life.Methods In this cross-sectional study,281 primary caregivers for elderly Parkinson's patients who visited the Department of Neurology's outpatient clinics of Qilu Hospital of Shandong University from January to May 2021 were surveyed via a convenience sampling method,with 242 valid questionnaires(86.1%).The Chinese versions of the Caregiver Burden Questionnaire,Social Support Rating Scale and 36-Item Short Form Health Survey were used for the investigation.Pearson correlation analysis was used to establish a structural equation model for the influence of social support in the burden and quality of life of caregivers for PD patients.The mediating effects were tested using Process v2.16.3 and re-tested using AMOS.The mediating effects were validated with Bootstrap.Results Primary caregivers'scores on burden,social support and quality of life were(26.9±23.1),(40.5±8.7)and(593.7±163.3),respectively.Caregiver burden was negatively correlated with social support(r=-0.482,P<0.01),and social support was positively correlated with quality of life(r=0.513,P<0.01).Caregiver burden was negatively correlated with quality of life(r=-0.654,P<0.01),The validated mediating effects showed caregiver burden's direct effects on quality of life(95%CI:-0.38-0.61)and mediating effects of social support(95%CI:-0.08-0.21),not including 0,indicating that the care burden of primary caregivers for elderly PD patients was not only able to predict their quality of life,but also predict their quality of life through the mediating effects of social support(direct effect:-0.50 and mediating effect:-0.14,accounting for 78.0%and 22.0%,respectively,of the total effect of-0.64).Conclusions Care burden and social support are important factors affecting the quality of life of primary caregivers for elderly PD patients.Reducing care burden can not only direct

关 键 词：帕金森病 社会支持 生活质量 

分 类 号：R742.5[医药卫生—神经病学与精神病学]