Beckwith-Wiedemann综合征频发低血糖1例患儿的护理  

Nursing care of a child with Beckwith-Wiedemann Syndrome frequent hypoglycemia

作　　者：黄栎株 张萌[1] 郑凡凡 丁亚丹 张诗毅 何丽兰[2] Huang Lizhu;Zhang Meng;Zheng Fanfan;Ding Yadan;Zhang Shiyi;He Lilan(School of Nursing,Jinan University,Guangzhou 530632,China;Neonatology Department,the First Affiliated Hospital of Jinan University,Guangzhou 510630,China)

机构地区：[1]暨南大学护理学院,广州530632 [2]暨南大学附属第一医院新生儿科,广州510630

出　　处：《中国实用护理杂志》2022年第5期385-388,共4页Chinese Journal of Practical Nursing

基　　金：2021年广东省护士协会科研课题基金(gdshsxh2021a175)。

摘　　要：目的总结1例Beckwith-Wiedemann综合征巨大儿频发低血糖的血糖管理及护理经验。方法组建多学科团队,对1例Beckwith-Wiedemann综合征巨大儿制订个体化护理计划。应用动态血糖监测系统严密监测患儿血糖波动,根据血糖情况动态调节输液量及奶量,及时发现并处理低血糖;加强患儿皮肤护理并对家属实施心理护理。结果经过精细化治疗及护理,患儿生命体征稳定,血糖维持在正常范围后出院。结论多学科团队指导下使用动态血糖监测系统能有效监测并控制Beckwith-Wiedemann综合征患儿的血糖波动情况,可为患儿进一步的治疗提供基础。Objective To summarize the experience of blood glucose management and nursing for a newborn with repeated hypoglycemia in Beckwith-Wiedemann syndrome.Method A multidisciplinary team was formed,and formulated an individualized care plan for a large infant with Beckwith-Wiedemann syndrome.A dynamic blood glucose monitoring system was used to closely monitor blood glucose fluctuations for this children,dynamically adjusted the amount of infusion and milk according to the blood sugar situation,detected and dealed with hypoglycemia in time,strengthened the skin care of child and implemented psychological care for the family.Results After refined treatment and care,the child′s vital signs were stable,and his blood sugar could maintain within a normal range before being discharged from the hospital.Conclusions The use of dynamic blood glucose monitoring system under the guidance of a multidisciplinary team can effectively monitor and control the blood glucose fluctuations of children with BWS syndrome,which can provide a basis for further treatment of children.

关 键 词：BECKWITH-WIEDEMANN综合征 血糖 动态监测 巨大儿 低血糖 护理 

分 类 号：R473.72[医药卫生—护理学]