癌症患者与家属疾病沟通现状的质性研究  

Qualitative Study on the Current Situation of Disease Communication between Cancer Patients and Their Families

作　　者：郑琛 张习禄 周艳红 张媛 ZHENG Chen;ZHANG Xilu;ZHOU Yanhong;ZHANG Yuan(College of Humanities and Management,Shaanxi University of Chinese Medicine,Xianyang 712046,China;General Surgery Department,Affiliated Hospital of Shaanxi University of Chinese Medicine,Xianyang 712000,China)

机构地区：[1]陕西中医药大学人文管理学院,陕西咸阳712046 [2]陕西中医药大学附属医院普外科,陕西咸阳712000

出　　处：《中国医学伦理学》2022年第9期949-954,共6页Chinese Medical Ethics

基　　金：2019年陕西省教育厅重点科学研究计划项目“基于传统医德和叙事医学的人文元素对医患关系与临床治疗的积极作用研究”(19JZ028)。

摘　　要：为进一步深入探究临床实践中癌症患者与家属疾病沟通的现状,以期为和谐医患关系的构建提供参考。采用目的抽样法于2021年9-11月选取X市某三级甲等综合性医院的肿瘤科10名医生进行半结构式访谈,采用Colaizzi七步分析法对访谈资料进行分析、提炼与总结。结果显示,当下癌症患者与家属疾病沟通的现状可归纳为3个主题:疾病诊断期的隐瞒信息、疾病治疗期的尴尬决策和疾病终末期的难以自主。建议基于以上情况,可从病情告知、合作共赢、心理照护等不同维度,构建以医务人员为桥梁,患者与家属共同积极面对及参与的临床沟通模式。To further explore the current situation of disease communication between cancer patients and their families in clinical practice, and provide decision-making reference for the construction of harmonious doctor-patient relationship. From September to November, 2021, 10 oncologists from a third-class A general hospital in X city were selected for semi-structured interviews by objective sampling method, and Colaizzi seven-step analysis was used to analyze, refine and summarize the interview data. The results showed that the current situation of disease communication between cancer patients and their families can be summarized into three themes: concealing information during the diagnosis period, embarrassing decision-making during the treatment period, and difficult in autonomy at the end stage of the disease. Based on this situation, this paper suggested that a clinical communication mode with medical staff as a bridge and patients and their families actively facing and participating together can be constructed from different dimensions such as disease notification, win-win cooperation and psychological care.

关 键 词：癌症 疾病沟通 知情同意 家庭主义 

分 类 号：R-05[医药卫生]