患者获取在线健康信息的障碍因素研究——以精神疾病患者为例  

Research on the Obstacles of Patients’Access to Online Health Information-Taking Psychiatric Patients Study as an Example

作　　者：曹文振 周庆山[2] Cao Wenzhen;Zhou Qingshan(School of Public Health and Management,Wenzhou Medical University,Wenzhou 325035,China;Department of Information Management,Peking University,Beijing 100871,China)

机构地区：[1]温州医科大学公共卫生与管理学院,温州325035 [2]北京大学信息管理系,北京100871

出　　处：《图书情报研究》2022年第4期35-43,共9页Library and Information Studies

基　　金：国家社会科学基金项目“信息弱势群体电子公共服务利用障碍及援助机制研究”(项目编号:20BTQ079)的研究成果之一。

摘　　要：[目的/意义]有关用户获取在线健康信息阻碍因素的文献较为分散,缺少整体理解,对此开展系统探索有利于提高健康信息的服务水平与改善疾病患者的临床预后。[方法/过程]通过立意抽样、滚雪球抽样与偶遇抽样结合的混合抽样方法,获取17名不同类型精神疾病的患者作为样本。运用半结构化深度访谈法收集访谈录音数据并转录为文本。采用ATLAS.ti软件开展主题分析抽取患者获取在线健康信息的障碍因素。[结果/结论]应当从用户素质、安全顾虑、信息能力、情感体验、内容质量、健康状况和替代渠道7个范畴以及17个维度全面地考虑患者获取在线健康信息的障碍因素。建议从提高编写质量、改善表述方式、建立语义关联、提供个性化服务等方面帮助患者更好获取在线健康信息。阻碍因素需要得到健康信息供给者的改进以及进一步的研究。[Purpose/significance]The literature on the obstacles to users’access to online health information is fragmented and lacks a holistic understanding.Systematic exploration of this topic would be beneficial in improving the service quality of health information and the clinical prognosis of patients.[Method/process]A mixed sampling method combining purposive sampling,snowball sampling and accidental sampling were used to obtain samples of 17 patients with different types of mental disorders.Semi-structured in-depth interview method was adopted to collect audio-recorded interview data,which were then transcribed into text.Thematic analysis was conducted using ATLAS.ti software to extract the obstacle factors of patients’access to online health information.[Result/conclusion]The obstacles of patients’access to online health information should be comprehensively considered in 7 categories:users’literacy,security concerns,information competence,emotional experience,content quality,health status and alternative sources,as well as 17 subcategories.Suggestions are made to help patients access online health information better in terms of enhancing writing quality,improving the way of exp ression,establishing semantic associations and providing personalized services.The obstacles need to be addressed by health information providers and further research.

关 键 词：在线健康信息 障碍因素 患者 精神疾病 健康信息服务 

分 类 号：R-05[医药卫生] G354[文化科学—情报学]