我国健康医疗科学数据权属管理现状、问题与对策研究  

Status,Problems and Possible Solutions for Health and Medical Science Data Ownership Management in China

作　　者：李赞梅[1] 刘懿 蔡妙芝 赵嘉玮 冯凤翔 李晓瑛[1] 栾冠楠[1] 任慧玲[1] 杨俊涛[2] LI Zanmei;LIU Yi;CAI Miaozhi;ZHAO Jiawei;FENG Fengxiang;LI Xiaoying;LUAN Guannan;REN Huiling;YANG Juntao(Institute of Medical Information&Library,Chinese Academy of Medical Sciences&Peking Union Medical College,Beijing 100005,China;Institute of Basic Medical Sciences,Chinese Academy of Medical Sciences&Peking Union Medical College,Beijing 100005,China)

机构地区：[1]中国医学科学院/北京协和医学院医学信息研究所/图书馆,北京100005 [2]中国医学科学院/北京协和医学院基础医学研究所,北京100005

出　　处：《医学信息学杂志》2022年第11期1-7,共7页Journal of Medical Informatics

基　　金：科技创新2030——“新一代人工智能”重大专项课题“中文医学术语体系构建”(项目编号:2020AAA0104901)。

摘　　要：介绍国内外学术界和实务界对数据权属问题的研究与实践发展现状,从数据确权、隐私泄露、跨境流通等角度分析健康医疗科学数据权属问题不明带来的几大现实困境与挑战,提出相关建议,包括加快数据权立法、平衡数据主体权益、实施分级分类管理等。The paper introduces the research and practice development status of data ownership in the academic and practical circles at home and abroad,analyzes several practical dilemmas and challenges caused by the unclear ownership of health and medical science data from the perspectives of data ownership confirmation,privacy disclosure,cross-border circulation,etc.,and puts forward relevant suggestions,including speeding up the legislation of data rights,balancing the rights and interests of data subjects,implementing hierarchical and classified management,etc.

关 键 词：健康医疗大数据 科学数据 数据权 数字经济 数据流通 

分 类 号：R-058[医药卫生]