肠易激综合征患者报告结局与生命质量测定特异性量表研究进展  

A Review of Studies on Patient-reported Outcomes and Disease-specific Health-related Quality of Life Instruments for Irritable Bowel Syndrome

作　　者：巫小玉 万崇华 陈莹 阮艳琴 翁一洁 许小江 WU Xiaoyu;WAN Chonghua;CHEN Ying;RUAN Yanqin;WENG Yijie;XU Xiaojiang(Research Center for Quality of Life and Applied Psychology/Key Laboratory for Quality of Life and Psychological Assessment and Intervention,Guangdong Medical University,Dongguan 523808,China;School of Public Health,Kunming Medical University,Kunming 650500,China;Department of Gastroenterology,Affiliated Hospital of Guangdong Medical University,Zhanjiang 524023,China;Department of Gastroenterology,the Second Affiliated Hospital of Guangdong Medical University,Zhanjiang 524023,China)

机构地区：[1]广东医科大学生命质量与应用心理研究中心,生命质量与心理测评干预重点实验室,广东省东莞市523808 [2]昆明医科大学公共卫生学院,云南省昆明市650500 [3]广东医科大学附属医院消化内科,广东省湛江市524023 [4]广东医科大学附属第二医院消化内科,广东省湛江市524023

出　　处：《中国全科医学》2023年第18期2268-2276,共9页Chinese General Practice

基　　金：国家自然科学基金资助项目(71373058)——慢性病患者报告结局测定量表体系研制及其得分的最小临床有意义差异制定;国家自然科学基金资助项目(72164024)——慢性消化系统疾病患者报告结局量表“模块式”研制及其在移动医疗健康APP中的应用。

摘　　要：肠易激综合征患者相关量表测评已经广泛应用于临床实践,如何选择合适的测评工具至关重要。基于此,本文采用文献检索方法搜索与肠易激综合征有关的特异性量表,总结其主要内容和测量学特性并提出量表选择建议。共计检索到37个肠易激综合征患者常用的生命质量测定相关特异性量表,目前已证实现有的肠易激综合征特异性量表具有较好的信度、效度和反应度,能较好地运用于临床实践中,建议医学及相关科研人员应根据不同研究目的和内容选择相应的量表。Scale assessment for irritable bowel syndrome(IBS)has been widely implemented in clinical practice,how to choose an appropriate assessment tool is very important.In view of this,we used literature research methodology to search patient-reported outcomes and disease-specific health-related quality of life instruments for IBS,summarized their main contents and psychometric properties,then put forward recommendations on the selection of the instruments.A total of 37 commonly used instruments for IBS were retrieved,which have proven to have good reliability,validity and responsiveness,and can be better applied in clinical practice.We suggest medical professionals and researchers choose an assessment instrument for IBS according to the purpose and content of their research.

关 键 词：肠易激综合征 患者报告结局评价 生活质量 特异性量表 测量学特征 信度 重测信度 效度 

分 类 号：R574.62[医药卫生—消化系统]