天疱疮住院患者家属照顾者情感体验的质性研究  

Qualitative Study on the Emotional Experience of Family Caregivers of Inpatients with Pemphigus

作　　者：高晓敏[1] 贾金花 惠文焕 杨甜甜 GAO Xiaomin;JIA Jinhua;HUI Wenhuan;YANG Tiantian(Department of Dermatology,the Second Affiliated Hospital of Xi'an Jiaotong University,Xi'an 710004,China)

机构地区：[1]西安交通大学第二附属医院皮肤科,陕西西安710004

出　　处：《中国医学伦理学》2023年第5期556-560,共5页Chinese Medical Ethics

摘　　要：目的研究天疱疮患者家属照顾者的情感体验,为该群体制定针对性干预和支持提供参考依据。方法运用质性研究中的现象学研究方法,通过目的抽样法,对2021年9月-2022年6月的13名天疱疮患者家属照顾者进行深入的半结构访谈,采用Colaizzi分析法对资料进行分析。结果天疱疮住院患者家属照顾者情感体验归纳为以下5个主题:家属照顾者的认知缺乏,家属照顾者经济及心理负担重,对治疗中使用激素药物的顾虑较多,家属照顾者能够为患者提供正向的引导与支持,家属照顾者生活质量的负面影响。结论护理人员应关注家属照顾者的情感体验,加强疾病知识及用药讲解,并进行心理疏导,增加治疗信心,达到促进患者康复的目的。Objective:To study the emotional experience of family caregivers of patients with Pemphigus,and to provide reference for them to formulate targeted intervention and support.Methods:Using the phenomenological research method in qualitative research and purposive sampling method,in-depth semi-structured interviews were conducted with 13 family caregivers of patients with pemphigus from September 2021 to June 2022.Colaizzi analysis method was used for data analysis.Results:The emotional experience of family caregivers of inpatients with pemphigus was summarized into five themes:lack of cognition,high financial and psychological burden,more concerns about the use of hormone drugs in treatment,provide positive guidance and support for patients,negative effect on the quality of life.Conclusion:Nursing staff should pay attention to the emotional experience of family caregivers,enhance disease knowledge and medication explanation,conduct psychological counseling,and increase treatment confidence,so as to achieve the purpose of promoting the rehabilitation of patients.

关 键 词：天疱疮 家属 照顾者 情感体验 质性研究 

分 类 号：R-4[医药卫生]