《儿童难治性癫痫生酮饮食治疗患者指南》的构建  

Construction of Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy

作　　者：方嘉欣 龙芷雨 杨丹 张小艳 李学靖[3] 张大华 Fang Jiaxin;Long Zhiyu;Yang Dan;Zhang Xiaoyan;Li Xuejing;Zhang Dahua(School of Traditional Chinese Medicine,Beijing University of Chinese Medicine,Beijing 102488,China;Nursing Department,Peking Union Medical College Hospital,Chinese Academy of Medical Sciences,Beijing 100730,China;School of Nursing,Beijing University of Chinese Medicine,Beijing 102488,China;Nursing Department,Beijing University of Chinese Medicine Third Affiliated Hospital,Beijing 100029,China)

机构地区：[1]北京中医药大学中医学院,北京102488 [2]中国医学科学院北京协和医院护理部,北京100730 [3]北京中医药大学护理学院,北京102488 [4]北京中医药大学第三附属医院护理部,北京100029

出　　处：《中华现代护理杂志》2023年第24期3301-3307,共7页Chinese Journal of Modern Nursing

摘　　要：目的构建《儿童难治性癫痫生酮饮食治疗患者指南》。方法本指南基于A Guideline Adaptation and Implementation Planning Resource(CAN-IMPLEMENT)理论框架和以患者为导向知识工具,形成研究路线。通过明确研究问题、证据整合、指南形成等规范步骤,构建《儿童难治性癫痫生酮饮食治疗患者指南》。结果共形成17条儿童难治性癫痫生酮饮食治疗相关的研究问题;共纳入11篇文献,包括指南4篇、共识7篇;最终构建的患者指南包含评估,实施前准备,实施与监测,随访、评价与终止4个主题、29条推荐条目。结论本研究构建的患者指南,基于科学的构建框架与方法,充分考虑患者需求,可为管理难治性癫痫患儿的生酮饮食治疗提供参考。Objective To construct the Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy.Methods This guideline was based on the theoretical framework of A Guideline Adaptation and Implementation Planning Resource(CAN-IMPLEMENT)and patient-oriented knowledge tools,forming the research roadmap.The Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy was constructed by clarifying research questions,evidence integration,guideline formation and other normative steps.Results A total of 17 research questions on ketogenic diet therapy in children with refractory epilepsy were formed.A total of 11 papers were included,including 4 guidelines and 7 consensuses.The final patient version of guideline included 4 themes,involving assessment,pre-implementation preparation,implementation and monitoring,follow-up,evaluation and termination,and 29 recommended items.Conclusions The patient version of guideline constructed in this study is based on a scientific construction framework and method,and fully considers the needs of patients,which can provide a reference for the management of ketogenic diet therapy in children with refractory epilepsy.

关 键 词：儿童 患者指南 难治性癫痫 生酮饮食 

分 类 号：R742.1[医药卫生—神经病学与精神病学]