275例早中期帕金森病患者社会参与现状及其相关因素分析  

Social participation status and its related factors in patients with mild to moderate Parkinson's disease:a 275-case study

作　　者：汪虹 许方蕾[3] 汤爱玲[3] 张月[2] 管强[2] 龚海燕[2] WANG Hong;XU Fanglei;TANG Ailing;ZHANG Yue;GUAN Qiang;GONG Haiyan(School of Medicine,Tongji University,Shanghai 200092,China;不详)

机构地区：[1]同济大学医学院,上海200092 [2]同济大学附属同济医院神经内科,上海200065 [3]同济大学附属同济医院护理部

出　　处：《中华全科医学》2023年第11期1907-1911,共5页Chinese Journal of General Practice

基　　金：国家重点研发计划课题(2018YFC1314704);上海市同济医院国自然培育项目(GJPY2148)。

摘　　要：目的了解早中期帕金森病患者社会参与的现状,并对其相关因素进行分析,为患者制定个性化、针对性强的干预方案提供可参考的依据。方法采用便利抽样的方法选取2021年1-12月至上海市同济医院神经内科门诊就诊的275例早中期帕金森病患者,进行一般资料、自主参与问卷(IPA)、自我护理能力量表(ESCA)、统一帕金森病评定量表第Ⅲ部分(UPDRS-Ⅲ)和领悟社会支持量表(PSSS)的问卷调查,采用多元线性回归分析探讨其影响因素。结果早中期帕金森病患者平均IPA总分为(65.25±28.78)分,属于中度参与水平;多元线性回归显示,文化程度(t=10.562,P<0.001)、疾病分期(t=10.601,P<0.001)、自我护理能力(t=3.212,P=0.001)、运动功能障碍程度(t=2.121,P=0.034)和领悟社会支持(t=3.562,P<0.001)是影响早中期帕金森病患者社会参与的主要因素。结论影响早中期帕金森病患者社会参与水平的因素是多方面的,医务人员应根据主要影响因素制定针对性的干预措施,扩大社会对该类患者的关注度,以促进患者参与社会,提高其生活质量。Objective To investigate the social participation status of people with mild to moderate Parkinson's disease(PD),and to analyze the factors associated with it,in order to provide a reference for intervention.Methods A total of 275 patients with mild to moderate PD who visited the clinic of the Department of Neurology in Shanghai Tongji Hospital from January to December 2021 were selected using convenience sampling.The patients were assessed using a general information questionnaire,the impact on participation and autonomy questionnaire(IPA),the exercise of self-care agency scale(ESCA),the unified Parkinson's disease rating scale partⅢ(UPDRS-Ⅲ),and the perceived social support scale(PSSS).Results The mean total score of social participation in mild to moderate PD patients was(65.25±28.78)points.Multivariate regression analysis showed that education level(t=10.562,P<0.001),disease stage(t=10.601,P<0.001),self-care ability(t=3.212,P<0.01),motor dysfunction(t=2.121,P<0.05)and perceived social support(t=3.562,P<0.001)were the factors most associated with social participation in mild to moderate PD patients.Conclusion The level of social participation in mild to moderate PD patients was related to many factors.More social attention should be paid to these patients and interventions should be provided based on the factors involved to improve their ability to participate in society and their quality of life.

关 键 词：帕金森病 社会参与 影响因素 

分 类 号：R742.5[医药卫生—神经病学与精神病学]