癌症晚期患儿家庭尊严疗法干预方案的构建  

Construction of Family-based Dignity Therapy Protocol for Advanced Cancer Patients in Pediatrics and Their Families

作　　者：林君忆 郭巧红 周翾[2] 李慧君[3] 蔡思雨 邓婵娟 LIN Junyi;GUO Qiaohong;ZHOU Xuan;LI Huijun;CAI Siyu;DENG Chanjuan(School of Nursing,Capital Medical University,Beijing 100069,China;Hematology Center,National Center for Children’s Health,Beijing Children’s Hospital Affiliated to Capital Medical University,Beijing 100045,China;Department of Nursing,National Center for Children’s Health,Beijing Children’s Hospital Affiliated to Capital Medical University;Center for Clinical Epidemiology and Evidence-based Medicine,National Center for Children’s Health,Beijing Children’s Hospital Affiliated to Capital Medical University)

机构地区：[1]首都医科大学护理学院,北京100069 [2]国家儿童医学中心首都医科大学附属北京儿童医院血液病中心,北京100045 [3]国家儿童医学中心首都医科大学附属北京儿童医院护理部 [4]国家儿童医学中心首都医科大学附属北京儿童医院临床流行病与循证医学中心

出　　处：《军事护理》2023年第12期50-54,共5页MILITARY NURSING

基　　金：北京市自然科学基金(7232001);深圳市拾玉儿童公益基金会与北京新阳光慈善基金会儿童舒缓治疗专项基金联合发起的拾玉舒缓安宁科研基金•儿童专项(2023ZD01)。

摘　　要：目的构建适用于我国癌症晚期患儿和家属的家庭尊严疗法干预方案。方法基于儿童临终尊严模型,考虑儿童群体的尊严特点及中华文化特色,参照成人尊严疗法基本模式,拟定癌症晚期患儿家庭尊严疗法干预方案草案,并采用德尔菲法对其进行论证和修订。结果14名专家在2轮咨询中问卷回收率均为100%,专家权威系数为0.843。2轮专家咨询中对干预方案各部分的合理性、治疗性会谈提纲问题的易理解性、表达本土化、措辞恰当性、重要性和可接受性评分的平均值分别为3.69~5.00分、4.50~5.00分;肯德尔协调系数为0.281、0.167(均P<0.001)。干预方案包含干预对象、干预者、干预时机与场所、干预流程、干预态度和干预内容(治疗性会谈提纲)等6个方面。结论癌症晚期患儿家庭尊严疗法科学可靠,兼备儿童尊严特异性及中华文化特色,可为医务人员实施儿童家庭心理干预提供实践参考。Objective To develop a family-based dignity therapy(P-FBDT)protocol for advanced cancer patients in pediatrics and their families in China.Methods The first draft of the protocol was first formulated on the dignity model for dying children,following the basic procedure of dignity therapy in adults,and taking the characteristics of both children dignity and Chinese culture into consideration,and then revised and finalized using Delphi method.Results Recovery rates of the 14 experts for the 2 rounds of questionnaires were 100%.The expert authority coefficient was 0.843.For the rationality of each part of the protocol and the comprehensibility,cultural sensitivity,charity,importance,and acceptability of the therapeutic interview questions,the mean scores in 2 rounds of consultations were 3.69-5.00 and 4.50-5.00 respectively,and the coordination coefficients of expert opinions were 0.281 and 0.167(P<0.001)respectively.The final P-FBDT protocol included suitable participants,conducting team,intervention time,setting,procedure,tone and content(the therapeutic interview).Conclusions The P-FBDT is scientific and reliable,with the characteristics of both children dignity and Chinese culture,which can provide references for healthcare providers to implement family-based psychological intervention to advanced cancer children and families.

关 键 词：癌症晚期患儿 家庭尊严疗法 安宁疗护 心理干预 中华文化 

分 类 号：R473.72[医药卫生—护理学]