原发性先天性青光眼手术患儿照顾者负担现状及影响因素分析  

Analysis of current situation and influencing factors of caregiver burden in children with primary congenital glaucoma undergoing surgery

作　　者：黄晓云[1] 贲凌燕 谢瞻[1] HUANG Xiaoyun;BEN Lingyan;XIE Zhan(Department of Ophthalmology,the First Affiliated Hospital of Nanjing Medical University,Jiangsu Province,Nanjing 210029,China)

机构地区：[1]南京医科大学第一附属医院眼科,江苏南京210029

出　　处：《中国当代医药》2023年第34期119-122,127,共5页China Modern Medicine

摘　　要：目的探讨原发性先天性青光眼(PCG)手术患儿的主要照顾者负担状况,并分析其影响因素,为改善照顾者负担提供有效的参考依据。方法通过便利抽样法,于2018年9月至2021年5月选取南京医科大学第一附属医院眼科61例行手术治疗的PCG患儿,收集患儿及其主要照顾者人口学资料,并使用Zarit照顾者负担量表(ZCBI)评价PCG患儿主要照顾者的负担状况,运用多元线性回归分析法分析照顾者负担的影响因素。结果61例PCG患儿照顾者的ZCBI评分5~63分,为轻度到中度负担,其中无负担17例(27.87%),轻度负担25例(40.98%),中度负担16例(26.23%),重度负担3例(4.92%)。多元线性回归分析结果显示,PCG患儿病程(β=0.198,B=1.955,95%CI:0.539~3.370,P=0.008)、每天照顾患儿的时间(β=0.627,B=11.453,95%CI:8.231~14.675,P<0.001)以及参与护理患儿的照顾者人数(β=0.207,B=3.807,95%CI:0.969~6.645,P=0.009)为主要照顾者负担的危险因素,文化程度(β=-0.323,B=-4.851,95%CI:-7.595~-2.106,P=0.001)为主要照顾者负担的保护因素。结论行手术干预的PCG患儿照顾者负担受多种因素影响,护理人员应采取有效措施,如提供生理和心理指导,帮助PCG患儿照顾者提高其家庭、社会支持和应对能力,减少其照顾负担。Objective To investigate the main caregiver burden of children with primary congenital glaucoma(PCG)after surgery,and analyze its influencing factors,so as to provide effective reference for improving the caregiver burden.Methods By convenient sampling method,61 PCG children undergoing surgical treatment in the Ophthalmology Department of the First Affiliated Hospital of Nanjing Medical University from September 2018 to May 2021 were selected to collect demographic data of the children and their main caregivers,and Zarit caregiver burden interview(ZCBI)was used to evaluate the burden status of the main caregivers of PCG children.Multiple linear regression analysis was used to analyze the influencing factors of caregiver burden.Results The ZCBI scores of 61 caregivers of PCG children ranged from 5 to 63 points,indicating mild to moderate burden,of which 17(27.87%)had no burden,25(40.98%)had mild burden,16(26.23%)had moderate burden,and 3(4.92%)had severe burden.The results of multiple linear regression analysis showed that the disease duration of PCG children(β=0.198,B=1.955,95%CI:0.539-3.370,P=0.008)and the daily care duration of PCG children(β=0.627,B=11.453,95%CI:8.231-14.675,P<0.001)and the number of caregivers involved in the care of the child(β=0.207,B=3.807,95%CI:0.969-6.645,P=0.009)was the risk factor for primary caregiver burden,and education level(β=-0.323,B=-4.851,95%CI:-7.595--2.106,P=0.001)was the protective factor for primary caregiver burden.Conclusion Nursing staff should take effective measures,such as providing physiological and psychological guidance,to help PCG caregivers improve their family,social support and coping ability,and reduce their care burden.

关 键 词：原发性先天性青光眼 照顾者负担 Zarit照顾者负担量表 影响因素 

分 类 号：R775[医药卫生—眼科]