炎症性肠病队列数据库的建设和应用  

Construction and Application of Inflammatory Bowel Disease Cohort Database

作　　者：吴晓萍 郑涛 房静远[2] 童锦禄[2] 曹芝君[2] 乔宇琪[2] WU Xiaoping;ZHENG Tao;FANG Jingyuan;TONG Jinlu;CAO Zhijun;QIAO Yuqi(Information Center,Renji Hospital,School of Medicine,Shanghai Jiao Tong University,Shanghai200127;Division of Gastroenterology and Hepatology,Renji Hospital,School of Medicine,Shanghai Jiao Tong University,Shanghai200127)

机构地区：[1]上海交通大学医学院附属仁济医院信息中心,200127 [2]上海交通大学医学院附属仁济医院消化内科,200127

出　　处：《胃肠病学》2023年第4期237-242,共6页Chinese Journal of Gastroenterology

基　　金：上海申康医院发展中心2020—2022年“促进市级医院临床技能与临床创新三年行动计划”专病库项目(SHDC2020CR6020-001,SHDC2020CR6020-002)。

摘　　要：本文对上海交通大学医学院附属仁济医院牵头建设的炎症性肠病(IBD)专病队列数据库作一简介。参考国内外标准构建IBD数据集,源自多源异构平台的数据经数据抽取、清洗、归一化等信息化技术处理后,形成队列,建成重大专病数据库,提高了临床、教学、科研数据的采集效率和质量。数据库的展示和个性化导出功能有利于IBD科研工作和辅助临床决策;可为科研提供高效、全量、可靠的研究级数据支撑,为临床提供精准诊疗依据,挖掘医疗大数据背后潜在的临床规律。Under the organization of Renji Hospital,Shanghai Jiao Tong University School of Medicine,a specialized disease database of inflammatory bowel disease(IBD)cohort was deployed,and a brief introduction of the database was made in this article.The IBD data set was established by referring to domestic and foreign standards.Through data extraction,cleaning,normalization and other information processing technologies,data from multi-source heterogeneous platform were arranged to form a specialized major disease database of IBD cohort and the efficiency and quality of data collection in clinical practice,teaching and scientific research were guaranteed.The display and personalized export capacities of the database can promote the researches on IBD and assist the clinical decision-making.It provides not only efficient,comprehensive and reliable research-level data support for scientific research,but also a precise guidance for diagnosis and treatment of the disease.Furthermore,it can excavate the potential clinical principles based on medical big data.

关 键 词：炎症性肠病 专病数据库 多源异构数据 数据分析 

分 类 号：R574[医药卫生—消化系统] R-05[医药卫生—内科学]