癫痫青少年至成人过渡期准备中自我管理支持的证据总结  

Evidence summary for self-management of adolescents with epilepsy in transition readiness from adolescents to adults

作　　者：崔璀[1] 李双子[2] 魏晓琼[3] 王旭 陈文劲[2] 郑显兰[1] CUI Cui;LI Shuangzi;WEI Xiaoqiong;WANG Xu;CHEN Wenjing;ZHENG Xianlan(Department of nursing,Children's Hospital of Chongqing Medical University,Chongqing,400047,China)

机构地区：[1]重庆医科大学附属儿童医院护理部,重庆市400047 [2]重庆医科大学附属儿童医院神经内科,重庆市400047 [3]重庆医科大学附属儿童医院风湿免疫科,重庆市400047 [4]重庆医科大学附属儿童医院儿童卓越证据与指南协同创新实验室,重庆市400047

出　　处：《中国护理管理》2024年第2期244-250,共7页Chinese Nursing Management

基　　金：2022年重庆市科卫联合医学中青年高端人才科研项目(2022GDRC007);重庆医科大学未来医学青年创新团队支持项目(2022-26-W0008);国家儿童健康与疾病临床医学研究中心临床医学研究青年项目(2021-60-19)。

摘　　要：目的:总结癫痫青少年至成人过渡期准备中自我管理支持的相关证据,为临床医护人员及管理决策者提供循证依据。方法:计算机检索关于癫痫青少年至成人过渡期准备中自我管理支持的指南、最佳实践、推荐实践、系统评价、证据总结、专家共识等,检索时限为从建库至2023年5月10日。进行方法学质量评价后,结合专业人员的判断,进行证据提取与汇总。结果:根据纳入标准共筛出19篇文献,包括5篇指南、6篇系统评价、7篇专家共识和1篇推荐实践。从环境支持(共同参与、平台建设)、行为支持(发展过渡期档案、提高服用抗癫痫药物依从性的技能、优化生活方式的技能、院外急性癫痫发作应急技能)和认知支持(患者教育、正性心理建设、共享决策发展)3个方面,9个类别汇总了34条证据。结论:本研究总结的癫痫青少年至成人过渡期准备中自我管理支持的证据具有一定的全面性、科学性和实用性,为慢性病青少年自我管理支持的实践规范提供依据。Objective:To summarize the relevant evidence of self-management of adolescents with epilepsy in transition readiness from adolescents to adults.Methods:Clinical practice guidelines,best practice,recommended practice,systematic review,evidence summary,expert consensus,etc,on self-management adolescents with epilepsy in transition readiness were searched.The search period is from database establishment to May 10,2023.After methodological quality was assessed,evidence was extracted and summarized.Results:Nineteen articles were included,including five guidelines,six systematic reviews,seven expert consensus,and one recommended practice.Finally,a total of 34 pieces of evidence were summarized,including 3 aspects and 9 categories of management principles,environmental support(joint participation,platform construction),behavioral support(transition preparation record,antiepileptic drug compliance skills,lifestyle skills,out-of-hospital AS seizure skills),and cognitive support(patient education,positive psychology,shared decision-making).Conclusion:The evidence summary in this study is comprehensive,scientific,and practical,and provide reference for supporting self-management for adolescents with chronic diseases.

关 键 词：癫痫 青少年 自我管理 过渡期准备 证据总结 

分 类 号：R47[医药卫生—护理学] R197[医药卫生—临床医学]