青少年系统性红斑狼疮患者过渡期照护的最佳证据总结  

Summary of the best evidence for transitional care in adolescents with systemic lupus erythematosus

作　　者：龚相易 夏璇 孙静[2] 李杨[1] Gong Xiangyi;Xia Xuan;Sun Jing;Li Yang(School of Nursing,Peking Union Medical College,Beijing 100144,China;Department of Pediatrics,Peking Union Medical College Hospital,Beijing 100730,China)

机构地区：[1]北京协和医学院护理学院,北京100144 [2]北京协和医院儿科,北京100730

出　　处：《中华现代护理杂志》2024年第13期1788-1794,共7页Chinese Journal of Modern Nursing

摘　　要：目的总结青少年系统性红斑狼疮患者过渡期照护的最佳证据,为临床实施过渡期照护提供相应的参考。方法依据"6S"证据金字塔模型,检索国内外指南网站、相关协会网站及数据库,检索时间为建库至2023年11月7日。由2名研究者独立进行文献质量评价。依据乔安娜布里格斯研究所循证卫生保健中心的证据分级和推荐级别系统进行证据分级。结果共纳入20篇文献,其中临床决策1篇,指南1篇,专家共识16篇,系统评价2篇。从过渡原则、组建过渡团队、开始过渡、过渡期个体化照护、向成人医疗系统转移5个方面汇总形成27条最佳证据。结论本研究总结了青少年系统性红斑狼疮患者过渡期照护的最佳证据,医务人员可参考证据并结合医院政策、患者自身情况和患者与家长的意愿制定个性化的过渡期照护计划,帮助患者顺利过渡,改善患者转移后结局。Objective To summarize the best evidence of transitional care for adolescents with systemic lupus erythematosus,and provide reference for clinical implementation of transitional care.Methods According to the"6S"evidence pyramid model,the guide websites,related association websites and databases at home and abroad were searched from the establishment of the databases to November 7,2023.The quality of literature was evaluated independently by two researchers.The evidence was graded according to the evidence grading and recommendation grading system of the Joanna Briggs Institute Evidence-Based Health Care Center.Results A total of 20 articles were included,including one clinical decision,one guideline,16 expert consensus and two systematic evaluations.A total of 27 best pieces of evidence were extracted from five aspects,including transition principles,formation of transition teams,initiation of transition,individualized care during the transition period and transferring to the adult health care system.Conclusions This study summarizes the best evidence on transitional care for adolescent patients with systemic lupus erythematosus.Medical staff can refer to the evidence and combine hospital policies,patients'own conditions and the wishes of patients and parents to develop personalized transitional care plans to help patients transition smoothly and improve their outcomes after transfer.

关 键 词：系统性红斑狼疮 青少年 过渡期照护 证据总结 

分 类 号：R473.5[医药卫生—护理学]