“联爱工程”项目缓解儿童白血病家庭因病致贫的效果评价  

Evaluation of the effect of the"United Love Program"on alleviating disease-induced poverty in families with children having leukemia

作　　者：苏军 邵頔 王佳敏 郝薇 刘彦秀[1,2] 王龙 孙晓杰 SU Jun;SHAO Di;WANG Jiamin;HAO Wei;LIU Yanxiu;WANG Long;SUN Xiaojie(Center for Health Management and Policy Research,School of Public Health,Cheeloo College of Medicine,Shandong University,Jinan,Shandong 250012,China;NHC Key Laboratory of Health Economics and Policy Research(Shandong University),Jinan,Shandong 250012,China)

机构地区：[1]山东大学齐鲁医学院公共卫生学院卫生管理与政策研究中心,山东济南250012 [2]国家卫生健康委员会卫生经济与政策研究重点实验室(山东大学),山东济南250012

出　　处：《中华肿瘤防治杂志》2024年第1期39-46,共8页Chinese Journal of Cancer Prevention and Treatment

基　　金：山东大学青年交叉科学创新群体-文旅康养产业交叉融合创新研究团队(2020QNQT019);联爱工程“儿童白血病综合控制”项目实施评价研究。

摘　　要：目的基于广东省河源市“联爱工程”慈善医疗救助项目,了解儿童白血病家庭因病致贫情况并分析其影响因素,评价慈善医疗救助对因病致贫的缓解效果。方法整群选取2017-08-15-2022-06-30参与项目救助、河源市户籍、年龄<18岁、处于维持期或停药期的85例白血病患儿及照顾者作为干预组,招募未参与项目、年龄<18岁、户籍为云浮市或汕尾市、基本医疗保险所在地与户籍所在地一致、治疗阶段是维持期或停药期的36例白血病患儿及照顾者为对照组。通过问卷调查和项目报销数据收集干预组和对照组患儿及家庭的相关信息,采用χ^(2)检验、单因素和多因素logistic回归分析2组家庭因病致贫情况及影响因素。结果医保报销后,干预组和对照组因病致贫发生率分别为31.76%和75.00%;因病致贫总缺口分别为12.27和21.37万元,平均缺口分别为0.14和0.59万元;医保报销前后,2组家庭因病致贫发生率干预组均低于对照组,差异具有统计学意义,P<0.001。干预组经项目补充报销后,因病致贫发生率降至21.18%,与医保报销后的对照组指标水平差异有统计学意义,P<0.001;因病致贫总缺口和平均缺口分别降至8.82和0.10万元。亚组分析显示,治疗阶段和确诊后是否为贫困户2个特征的差异对因病致贫发生率不会产生较大影响。是否移植、确诊至今的时间、去医院就诊的频率、是否接受项目救助是影响儿童白血病家庭发生因病致贫的影响因素。结论广东省河源市儿童白血病家庭因病致贫发生率较高,慈善医疗救助在医保报销的基础上发挥了积极的经济补偿作用。Objective Based on the"United Love Program"charity medical assistance program in Heyuan City,to understand the disease-induced poverty in children with leukemia and analyze its influencing factors,and to evaluate the mitigation effect of charity medical assistance on disease-induced poverty.Methods A total of 85 children with leukemia and their caregivers,who met the following inclusion criteria:receiving the program assistance from August 15,2017 to June 30,2022,registered in Heyuan City,aged<18,and being in the maintenance period or drug withdrawal period,were selected as the intervention group.Totally 36 children with leukemia and their caregivers,who met the following inclusion criteria:not receiving the program assistance,aged<18,registered in Yunfu City or Shanwei City,the insured place being the same as the place of household registration,and being in the maintenance period or drug withdrawal period,were recruited as the control group.The relevant information of children and their families in the intervention group(who received the program assistance)and the control group(who did not receive the program assistance)were collected through questionnaire survey and program reimbursement data.Chi-square test,single factor and multiple logistic regression models were used to analyze the disease-induced poverty and its influencing factors in the two groups.Results After medical insurance reimbursement,the incidence of disease-induced poverty in the intervention group and the control group was31.76%and 75.00%,respectively.The total gap of disease-induced poverty was CNY 122700and CNY 213700,respectively,and the average gap was CNY 0.14thousand and CNY 0.59thousand,respectively.Before and after medical insurance reimbursement,the difference in the incidence of disease-induced poverty between the two groups was statistically significant(P<0.001),and the intervention group was lower than the control group.After the supplementary reimbursement of the program,the incidence of disease-induced poverty in the intervention

关 键 词：慈善医疗救助 儿童 白血病 因病致贫 效果评价 

分 类 号：R733.7[医药卫生—肿瘤]