中枢神经系统炎性脱髓鞘专病临床科研数据库设计与构建  

Design and Construction of a Specialized Clinical Research Database for Inflammatory Demyelinating Diseases of the Central Nervous System

作　　者：武雷 王冰 余倩 孙慧 赵赫 高赛 郭荷娜[3] 黄燕宁 孟召友 肖连臣 许海珍 黄德晖 WU Lei;WANG Bing;YU Qian;SUN Hui;ZHAO He;GAO Sai;GUO Hena;HUANG Yanning;MENG Zhaoyou;XIAO Lianchen;XU Haizhen;HUANG Dehui(Department of Neurology,First Medical Center of Chinese PLA General Hospital,Beijing 100853,China;Key Laboratory of Digital Technology in Medical Diagnostics of Zhejiang Province,Hangzhou 310030,China;Department of Neurology,Shaanxi Provincial People’s Hospital,Xi’an 710068,China;Department of Neurology,Second Affiliated Hospital of Army Medical University,Chongqing 400038,China;Department of Neurology,Affiliated Hospital of Hubei University of Arts and Science,Xiangyang 441000,China;Neurology Department,900th Hospital of Joint Logistics Support Force of the Chinese People’s Liberation Army,Fuzhou 350005,China)

机构地区：[1]中国人民解放军总医院第一医学中心神经内科医学部,北京100853 [2]浙江省数字医学诊断技术重点实验室,杭州310030 [3]陕西省人民医院神经内二科,西安710068 [4]陆军军医大学第二附属医院神经内科,重庆400038 [5]湖北文理学院附属医院神经内科,襄阳441000 [6]中国人民解放军联勤保障部队第900医院神经内科,福州350005

出　　处：《医学信息学杂志》2024年第5期83-88,共6页Journal of Medical Informatics

基　　金：中国研究型医院学会科研课题(项目编号:Y2023FH-SJKX09)。

摘　　要：目的/意义构建中枢神经系统(central nervous system,CNS)炎性脱髓鞘专病数据库,为临床科研服务,提高基层医疗水平。方法/过程利用互联网收集病历数据,经过处理和分析后,构建CNS炎性脱髓鞘专病数据库。运用统计分析、自然语言处理、人工智能影像识别和数据可视化等技术,整合分析数据库信息。结果/结论形成标准化的CNS炎性脱髓鞘专病数据库大数据信息池,将临床科研数据可视化,兼顾患者宣教、专科医生培训、多中心远程会诊功能,促进医疗科研成果转化,为未来真实世界的临床研究提供参考依据,优化诊疗路径,赋能基层医院。Purpose/Significance To construct a specialized database for inflammatory demyelinating disease of the central nervous system(CNS),so as to contribute to clinical research and improve the diagnostic and treatment capabilities of primary healthcare institutions.Method/Process Using the internet to collect medical data,after processing and analysis,the CNS inflammatory demyelinating disease database is constructed.Using statistical analysis,natural language processing(NLP),artificial intelligence(AI)image recognition and data visualization and other technologies,the database information is integrated and analyzed.Result/Conclusion A standardized big database for CNS inflammatory demyelinating diseases is constructed,which enables visualization of clinical research data,provides patient education and specialist training,and facilitates multi-center teleconsultations.The establishment of a specialized database for the CNS inflammatory demyelinating disease can promote the transformation of medical research achievements,provide references for future real-world clinical research,optimize the process of diagnosis and treatment,and improve the clinical capability of primary healthcare institutions.

关 键 词：炎性脱髓鞘疾病 数据库 大数据平台 

分 类 号：R-058[医药卫生]