癫痫患者自我管理现状及其影响因素分析  

Current status of self-management in patients with epilepsy and related influencing factors

作　　者：徐寒冬 王吉平[2] XU Handong;WANG Jiping(Department of Neurology,Jinshan Hospital,Fudan University,Shanghai 201508,China)

机构地区：[1]上海市复旦大学附属金山医院神经内科,上海201508 [2]上海市复旦大学附属金山医院科教科,上海201508

出　　处：《中风与神经疾病杂志》2024年第6期521-524,共4页Journal of Apoplexy and Nervous Diseases

摘　　要：目的研究成年癫痫患者的自我管理现状及其影响因素。方法采用癫痫患者自我管理量表(The Epilepsy Self-Management Scale,ESMS)对上海某区180例癫痫患者自我管理能力评估,分析社会人口学因素(性别、年龄、婚姻状况、教育程度等)和临床因素(癫痫起病年龄、病程、发作频率、服用药物种数等)对患者自我管理能力的影响。结果癫痫患者自我管理总分为(102.62±6.11)分。不同职业的患者在自我管理得分差异有统计学意义(F=2.950,P<0.05);不同家庭收入的患者在自我管理得分差异有统计学意义(F=7.298,P<0.05);患者漏服抗癫痫药物次数越少得分越高(F=35.948,P<0.05);不同专科随访频率的患者在自我管理得分差异有统计学意义(F=15.619,P<0.05)。药物管理与安全管理相关性最高(r=0.435,P<0.05),安全管理与发作管理得分相关性最低(r=-0.152,P<0.05)。多元线性回归分析结果显示,患者的服药依从性及与专科随访频率是自我管理总得分的影响因素。结论癫痫患者自我管理能力较差。提高患者就业率、增加家庭收入、提高服药依从性、增加专科随访频率对于提升患者自我管理能力有临床意义。Objective To investigate the current status of self-management in adult patients with epilepsy and related influencing factors.Methods Epilepsy Self-Management Scale(ESMS)was used to evaluate the self-management abilities of 180 patients with epilepsy in a district of Shanghai,China,and the impact of related factors on the selfmanagement abilities of patients was analyzed,including demographic factors(sex,age,marital status,and educational level,etc.)and clinical factors(age of onset,course of disease,seizure frequency,and types of medication,etc.).Results The total score of self-management was(102.62±6.11)points for the patients with epilepsy.There was a significant difference in self-management score between the patients with different occupations(F=2.950,P<0.05)and between the patients with different family incomes(F=7.298,P<0.05).The patients who missed fewer doses of antiepileptic drugs had a higher self-management score(F=35.948,P<0.05),and there was a significant difference in selfmanagement score between the patients with different follow-up frequencies(F=15.619,P<0.05).Medication management showed the strongest correlation with safety management(r=0.435,P<0.05),while safety management showed the lowest correlation with seizure management score(r=-0.152,P<0.05).The multiple linear regression analysis showed that medication compliance and follow-up frequency in specialized care were influencing factors for total self-management score.Conclusion The patients with epilepsy have poor self-management abilities,and improving employment rate,increasing family income,enhancing medication compliance,and increasing follow-up frequency in specialized care have a certain clinical significance in improving the self-management abilities of patients.

关 键 词：癫痫 自我管理 ESMS量表 影响因素 

分 类 号：R742.1[医药卫生—神经病学与精神病学]