头颈部葡萄酒色斑患者的病耻感现状及其影响因素  

Status and influencing factors of stigma in patients with port wine stains in the head and neck

作　　者：江燕[1] 冉雪会 林晓曦[1,3] 商颖 于文心[1] 徐青[1,2] 彭昊[1,2] 韩玥 沈玲悦[1,2] 马刚[1,3] JIANG Yan;Ran Xuehui;LIN Xiaoxi;SHANG Ying;YU Wenxin;XU Qing;PENG Hao;HAN Yue;SHEN Lingyue;MA Gang(Department of Laser and Aesthetic Medicine;Department of Oral and Maxillofacial-Head Neck Oncology;Department of Plastic and Reconstructive Surgery,Shanghai Ninth People’s Hospital,Shanghai Jiao Tong University School of Medicine,Shanghai 200011,China)

机构地区：[1]上海交通大学医学院附属第九人民医院激光美容科,上海市200011 [2]上海交通大学医学院附属第九人民医院口腔颌面-头颈肿瘤科,上海市200011 [3]上海交通大学医学院附属第九人民医院整复外科,上海市200011

出　　处：《组织工程与重建外科》2024年第3期335-343,350,共10页Journal of Tissue Engineering and Reconstructive Surgery

基　　金：上海市卫生健康委员会卫生行业临床研究专项(202240150);上海市科学技术委员会临床医学研究中心项目(22MC1940300)。

摘　　要：目的探讨头面部葡萄酒色斑(Port-wine stains,PWS)患者病耻感现状及其影响因素。方法采用便利抽样的方法,于2022年8月至2022年12月期间,抽取113例头颈部PWS患者为研究对象,通过一般人口学资料调查表、慢性疾病病耻感量表(SSCI)、社会影响量表(SIS)、自尊量表(SES)进行问卷调查。结果PWS患者SSCI得分为50.61±22.2、SIS得分为48.71±15.17,单因素方差分析显示,影响病耻感的因素有文化程度、月收入、治疗次数、PWS部位、PWS面积(P<0.05);PWS患者自尊水平条目得分为24.75±4.92,单因素方差分析显示,影响自尊水平的因素有月收入、是否工作(P<0.05)。SSCI得分、SIS得分均与SES得分呈显著负相关(P<0.01)。结论PWS患者病耻感处于中等水平,患者自尊水平较低。慢性疾病病耻感、社会影响病耻感均与自尊水平呈显著负相关,医护人员在治疗时应适当疏导患者,引导其积极面对疾病,并呼吁公众对慢性皮肤病患者多一些理解与关心。Objective To explore the current status and influencing factors of stigma in patients with port wine stains(PWS)in the head and neck.Methods Using the convenient sampling method,113 patients with PWS in the head and neck from August 2022 to December 2022 were recruited.The general demographic data questionnaire,stigma scale for chronic illness(SSCI),social impact scale(SIS)and self-esteem scale(SES)were used to conduct a questionnaire survey.Results The SSCI score of patients with PWS was 50.61±22.2,and the SIS score was 48.71±15.17.Single-factor analysis of variance showed that the influencing factors of stigma were education level,monthly income,treatment times,lesion location,and lesion size(P<0.05);The SES score of patients with PWS was 24.75±4.92,and single-factor analysis of variance showed that the influencing factors of self-esteem were monthly income and job absence(P<0.05).SSCI scores and SIS scores were negatively correlated with SES scores(P<0.01).Conclusion Patients with PWS had a moderate level of stigma and a low level of self-esteem.Both chronic illness stigma and social impact stigma are significantly negatively correlated with the level of self-esteem.Medical staff should provide appropriate guidance to patients during treatment,enhancing patients’confidence and guiding patients to face the disease positively,and meanwhile,call on the public to give more concern to patients with chronic skin diseases.

关 键 词：葡萄酒色斑 病耻感 影响因素 

分 类 号：R732.2[医药卫生—肿瘤]