膀胱癌泌尿造口病人信息需求的纵向质性研究  

Longitudinal qualitative study on information needs of urostomy patients with bladder cancer

作　　者：严志洁 陈妍 汤利萍[1] 黎露思[1,2] 孙先霖 蔡师音 梁亿星 YAN Zhijie;CHEN Yan;TANG Liping;LI Lusi;SUN Xianlin;CAI Shiyin;LIANG Yixing(The First Affiliated Hospital of Nanchang University,School of Nursing,Jiangxi Medical College,Nanchang University,Jiangxi 330006 China)

机构地区：[1]南昌大学第一附属医院,330006 [2]南昌大学江西医学院护理学院

出　　处：《全科护理》2024年第16期3094-3098,共5页Chinese General Practice Nursing

基　　金：江西省研究生创新专项资金立项项目,编号:YC2023-S201。

摘　　要：目的:探究膀胱癌泌尿造口病人信息需求的变化情况,为优化病人的健康信息服务提供参考。方法:采用纵向质性研究方法,选取16例拟行泌尿造口术病人进行半结构式访谈,并对访谈资料进行横断面和纵向分析。结果:共提炼出4个主题,分别为疾病不同阶段的信息需求(诊断期、围术期、出院准备期、随访期、疾病复发与预后信息、心理情感及社会支持信息)、信息应对行为(消极接收信息、积极寻求信息)、信息寻求的阻碍因素(情绪反应强烈、症状困扰严重、盲目依从经验、认知水平差异、过度依赖医护人员)以及信息支持建议(加强信息支持的多元化、搭建专业的信息平台、提供预见性的信息)。结论:护理人员应根据病人不同阶段的信息需求特点,并结合个体信息应对行为及信息寻求阻碍因素,制定专业化的全程信息支持平台;同时促进信息支持方式的多元转化,为病人提供预见性信息护理,进而改善病人的健康结局。Objective:To explore the change of information needs of patients with urinary stomy for bladder cancer,and provide reference for optimizing health information services for patients.Methods:A longitudinal qualitative study method was used to select 16 patients to undergo urostomy for semi-structured interviews,and the interview data were analyzed cross-sectional and longitudinal.Results:Four themes were extracted.They were information needs at different stages of the disease(diagnosis,perioperative period,preparation for discharge,follow-up period,disease recurrence and prognosis information,psychological and emotional and social support information),information coping behaviors(negative reception of information,active seeking of information),and obstacles to information seeking(strong emotional response,serious symptom distress,blind compliance experience,cognitive differences,and over-dependence on medical personnel)and information support recommendations(strengthen the diversification of information support,build a professional information platform,provide predictive information).Conclusions:Nursing staff should develop specialized whole-process information support platform according to the characteristics of patients′information needs at different stages,combined with individual information coping behaviors and obstacles to information seeking.At the same time,it promotes the multiple transformation of information support methods,provides predictive information care for patients,and then improves the health outcome of patients.

关 键 词：泌尿造口 信息需求 信息支持 纵向研究 质性研究 

分 类 号：R473.73[医药卫生—护理学]