卫生健康科学数据权属问题探讨  

Discussion on Data Ownership Issues in Health Science Data

作　　者：荣注瑶 贾晓峰 胡志民[1] RONG Zhuyao;JIA Xiaofeng;HU Zhimin(School of Health Policy and Management,Chinese Academy of Medical Sciences&Peking Union Medical College,Beijing 100730,China;China National Health Development Research Center,Beijing 100044,China)

机构地区：[1]中国医学科学院/北京协和医学院卫生健康管理政策学院,北京100730 [2]国家卫生健康委卫生发展研究中心,北京100044

出　　处：《医学信息学杂志》2024年第8期8-13,19,共7页Journal of Medical Informatics

基　　金：中国医学科学院医学与健康科技创新工程项目(项目编号:2021-I2M-1-057)。

摘　　要：目的/意义探讨我国卫生健康科学数据权属问题,为科学数据开放共享与流通政策制定提供参考。方法/过程按照数据类型对数据权利进行探讨,初步构建数据权利体系,提出数据权利分配模式,在数据价值链视角下梳理权利转移过程。结果/结论构建以数据财产权、人格权和监管权为核心的权利体系,提出“固有权利+转移权利”的数据权利分配模式,明晰数据主体享有的数据权利。Purpose/Significance To discuss the issues of scientific data ownership in the realm of health in China,so as to provide theoretical references for the policy formulation of open sharing and flow of scientific data.Method/Process By exploring data rights based on data types,the study preliminarily constructs a data rights system,proposes a data rights distribution model,and examines the rights transfer process from the perspective of the data value chain.Result/Conclusion A rights system centered on data property rights,personal rights and regulatory rights is established.An“inherent rights+transferable rights”data rights distribution model is proposed and it has been implemented within the data value chain.

关 键 词：科学数据 卫生健康 数据权利 

分 类 号：R-058[医药卫生]