NICU临终新生儿父母决策参与体验质性研究的Meta整合  

Meta-synthesis of qualitative research on decision-making participation experience of parents of terminally ill neonates in NICU

作　　者：吴静 张先红[1] 魏璐 朱小川 WU Jing;ZHANG Xianhong;WEI Lu;ZHU Xiaochuan(Neonatal Diagnosis and Treatment Center,Children’s Hospital of Chongqing Medical University/Key Laboratory of Child Developmental Diseases Research,Ministry of Education/National Clinical Research Center for Child Health and Disorders/China International Science and Technology Cooperation Base of Child Development and Critical Disorders/Chongqing Key Laboratory of Pediatrics,Chongqing 400014,China)

机构地区：[1]重庆医科大学附属儿童医院新生儿诊治中心/儿童发育疾病研究教育部重点实验室/国家儿童健康与疾病临床医学研究中心/儿童发育重大疾病国家国际科技合作基地/儿科学重庆市重点实验室,重庆400014

出　　处：《中国医学伦理学》2024年第10期1213-1221,共9页Chinese Medical Ethics

基　　金：重庆市科卫联合医学科研项目“重庆地区早产儿父母应对能力现状及干预模式的构建与实证研究”(2021MSXM119)。

摘　　要：目的系统评价NICU临终新生儿父母决策参与体验的质性研究。方法检索数据库PubMed、Web of Science、Embase、CINAHL、Cochrane Library、Sinomed、中国知网、万方和维普数据库关于NICU临终新生儿父母决策参与体验的质性研究,检索时限为建库至2023年8月。文献质量评价采用澳大利亚乔安娜布里格斯研究所质性研究质量评价标准,采用汇集性Meta整合方法对文献进行归纳。结果共纳入13篇文献,提炼出33个结果,归纳为12个新类别,合成4个整合结果:临终新生儿父母决策参与倾向、临终新生儿父母决策角色体验、临终新生儿父母决策中的障碍、临终新生儿父母决策中的需求。结论NICU临终新生儿父母面临艰难的决策选择,医护人员需与父母共同确定其在决策中的理想角色,制定个性化的沟通内容,社会、医院以及家庭需创造支持性的社会心理环境,给予父母信息及情感支持,提高临终新生儿父母在决策中的应对力。Objective:To systematically evaluate the qualitative research on the decision-making participation experience of parents of terminally ill neonates in neonatal intensive care unit(NICU).Methods:Qualitative research on the decision-making participation experience of parents of terminally ill neonates in NICU were searched from PubMed,Web of Science,Embase,CINAHL,Cochrane Library,Sinomed,China National Knowledge Infrastructure(CNKI),Wanfang,and VIP databases,with the search period from the establishment of the database to August 2023.The quality of the literature was evaluated using the qualitative research quality evaluation standard of the Joanna Briggs Institute(JBI)in Australia,and the literature was summarized using a synthesizing meta-synthesis method.Results:A total of 13 articles of literature were included,as well as 33 results were extracted and classified into 12 new categories and synthesized into 4 integrative outcomes,including participation tendency,role experience,obstacles,and needs on parental decision-making of terminally ill neonates.Conclusion:Parents of terminally ill neonates in NICU face difficult decision-making choices.Medical staff need to work together with parents to determine their ideal role in decision-making and develop personalized communication content.Society,hospitals,and families need to create a supportive social and psychological environment to provide parents with information and emotional support,as well as improve the coping ability of parents of terminally ill neonates in decision-making.

关 键 词：新生儿重症监护室 临终新生儿父母 决策参与 决策体验 质性研究 Meta整合 

分 类 号：R-052[医药卫生]