家庭康复指导多元联合模式对脑瘫儿童照顾者照顾负担及生活质量的影响  

Impacts of family rehabilitation guiding multi-joint mode on the care burden and quality of life of cerebral palsy children’s caregivers

作　　者：朱晶晶 周俭芳 黄华玉[3] 陈艳 江丽娟 ZHU Jingjing;ZHOU Jianfang;HUANG Huayu;CHEN Yan;JIANG Lijuan(Office of Huajing Community Health Service Center of Xuhui District,Shanghai 200231,China;General Practice Department of Huajing Community Health Service Center of Xuhui District,Shanghai 200231,China;Rehabilitation Department of Huajing Community Health Service Center of Xuhui District,Shanghai 200231,China;Rehabilitation Department of Jiangchuan Community Health Service Center of Minhang District,Shanghai 200240,China)

机构地区：[1]上海市徐汇区华泾镇社区卫生服务中心院办,上海200231 [2]上海市徐汇区华泾镇社区卫生服务中心全科,上海200231 [3]上海市徐汇区华泾镇社区卫生服务中心康复科,上海200231 [4]上海市闵行江川社区卫生服务中心康复科,上海200240

出　　处：《上海医药》2024年第18期58-62,共5页Shanghai Medical & Pharmaceutical Journal

基　　金：2019年度上海市徐汇区医学科研项目(SHXH201927)。

摘　　要：目的:评估家庭康复指导多元联合模式干预对脑瘫患儿照顾者生活质量及照顾负担的影响。方法:采用随机数表将56例研究对象分为干预组和对照组(每组28例),对照组由专业治疗师开展传统家庭康复指导服务,干预组在前者基础上建立“专业治疗师+心理咨询师+社会工作者”家庭康复指导多元联合团队,实施家庭康复指导多元联合模式干预,比较干预前后两组照顾负担和生活质量差异。结果:干预后干预组照顾负担得分低于对照组,干预组生活质量得分优于对照组,差异均有统计学意义(均P<0.05)。结论:家庭康复指导多元联合模式有利于减轻脑瘫儿童照顾者照顾负担,提升其生活质量。Objective:To evaluate impacts of family rehabilitation guiding multi-joint mode intervention on their quality of life and care burden of the cerebral palsy children’s caregivers.Methods:Adopting random number table,56 research objects were divided into an intervention group and a control group with 28 patients each.The control group carried out traditional family rehabilitation guiding service,based on the former,the intervention group built up a family rehabilitation guiding multi-joint team with specialized therapists,psychiatrists and social workers,and implemented family rehabilitation guiding multi-joint mode intervention to compare the care burden and the quality of life between the two groups before and after the intervention.Results:The score of the care burden in the intervention group was lower than that in the control group,the score of the quality of life in the intervention group was better than that in the control group,and the difference was statically significant(P<0.05).Conclusion:Family rehabilitation guiding multi-mode benefits and alleviates the care burden of cerebral palsy children’s caregivers,and improves their quality of life.

关 键 词：脑瘫儿童 照顾者 多元联合模式 照顾负担 生活质量 

分 类 号：R742.3[医药卫生—神经病学与精神病学]