叙事医学视角下肺癌患者治疗过程中心理体验的质性研究  

A qualitative study on the psychological experiences of lung cancer patients during treatment from the perspective of narrative medicine

作　　者：杨小月[1] 陈琳 周松 龙凤娇[2] 林忠[2] 杨晓霖 刘康富 YANG Xiaoyue;CHEN Lin;ZHOU Song;LONG Fengjiao;LIN Zhong;YANG Xiaolin;LIU Kangfu(Nursing Department,the Fifth Affiliated Hospital of Sun Yat-Sen University,Zhuhai 519000,China;Department of Thoracic Oncology,the Fifth Affiliated Hospital,Sun Yat-sen University,Zhuhai 519000,China;Department of Neurology,the Fifth Affiliated Hospital,Sun Yat-sen University,Zhuhai 519000,China;Narrative Medicine Research Center,Shunde Hospital of Southern Medical University,Foshan 528000,China;Office of the Dean,the Fifth Affiliated Hospital of Sun Yat-Sen University,Zhuhai 519000,China)

机构地区：[1]中山大学附属第五医院护理部,广东珠海519000 [2]中山大学附属第五医院胸部肿瘤科,广东珠海519000 [3]中山大学附属第五医院神经内科,广东珠海519000 [4]南方医科大学顺德医院叙事医学研究中心,广东佛山528000 [5]中山大学附属第五医院院长办公室,广东珠海519000

出　　处：《中国医学伦理学》2024年第11期1295-1301,共7页Chinese Medical Ethics

基　　金：2023年珠海市社会发展领域科技计划项目“叙事医学在中晚期肺癌患者全程管理中的应用及其对患者生存质量的影响”(2320004000224)。

摘　　要：目的基于叙事医学视角,探究肺癌患者治疗过程中的心理体验,为针对性护理干预提供参考。方法以叙事医学理念为指导,采用质性研究的现象学方法,对20例肺癌患者进行深度访谈,通过内容分析法对访谈资料进行分析提炼与总结。结果从叙事医学人文价值的角度出发,在20例肺癌患者的访谈内容中,提炼出患者对角色身份认同的丧失、疾病不确定感体验、对死亡的恐惧与期许以及对人生的无奈与感悟4个主题。结论肺癌患者治疗过程中存在角色身份认同丧失、疾病不确定感、恐惧死亡、希望有尊严地离去等负性心理体验,同时也存在对生命意义的思考及积极应对等积极感悟。Objective:To explore the psychological experiences of lung cancer patients during treatment based on the perspective of narrative medicine,and to provide references for targeted nursing interventions.Methods:Guided by the concept of narrative medicine,the phenomenological method of qualitative research was used to conduct in-depth interviews with 20 lung cancer patients.The interview data were analyzed,refined,and summarized by using the content analysis method.Results:From the perspective of the humanistic value of narrative medicine,four themes were extracted from the interview contents with 20 lung cancer patients,including the loss of patients’role identity,the experience of disease uncertainty,the fear and expectation of death,and the helplessness and perception of life.Conclusion:During the treatment process of lung cancer patients,there are negative psychological experiences,such as loss of role identity,uncertainty of disease,fear of death,and hope to leave with dignity.Meanwhile,there are positive perceptions,such as contemplation of the meaning of life and actively coping with it.

关 键 词：叙事医学 肺癌患者 心理体验 人文价值 

分 类 号：R-4[医药卫生]