基于家庭赋权的督导跟进式护理在杜氏肌营养不良症患儿中的应用效果  

Effect of supervised follow⁃up nursing based on family empowerment on nutritional status in children with Duchenne muscular dystrophy

作　　者：史巧维 孙红格 陈花 Shi Qiaowei;Sun Hongge;Chen Hua(Department of Pediatrics,Northwest Women and Children’s Hospital,Xi’an 710061,China)

机构地区：[1]西北妇女儿童医院儿内科,陕西西安710061

出　　处：《海军医学杂志》2024年第11期1172-1177,共6页Journal of Navy Medicine

基　　金：陕西省重点研发计划(2023-YBSF-032)。

摘　　要：目的分析基于家庭赋权的督导跟进式护理在杜氏肌营养不良症(DMD)患儿中的应用效果。方法选取2020年1月至2023年1月在西北妇女儿童医院接受治疗的85例DMD患儿作为研究对象,按照不同的护理方法分为对照组(40例)和观察组(45例),对照组行常规护理模式,观察组在对照组基础上行基于家庭赋权的督导跟进式护理模式,比较2组患儿干预前后营养状况[身体水分、蛋白质、脂肪含量、基础代谢率(BMR)]、评价患儿家属照护者能力(中文版家属照顾者照顾能力量表)、运动功能[简化Fugl⁃Meyer评定法(FMA)]、生活质量[儿少主观生活质量问卷(ISLQ)]以及患儿家属护理满意度。结果干预后,观察组患儿身体水分、蛋白质、BMR高于对照组,脂肪含量低于对照组(P<0.05);观察组患儿家属照护者能力各维度评分均低于对照组(P<0.05);观察组患儿FMA评分高于对照组,ISLQ认知及情感评分均高于对照组(P<0.05);观察组患儿家属护理满意度高于对照组(P<0.05)。结论对DMD患儿行基于家庭赋权的督导跟进式护理能够增强患儿家属照护者能力,提高患儿运动功能,改善患儿营养状况,进而提高患儿生活质量及家属满意度。Objective To analyze the effect of supervised follow⁃up nursing based on family empowerment on nutritional status in children with Duchenne muscular dystrophy(DMD).Methods A total of 85 children with DMD who were treated in Northwest Women and Children’s Hospital between January 2020 and January 2023 were enrolled in this study.According to different nursing methods,they were divided into control group(n=40,routine nursing)and observation group(n=45,supervised follow⁃up nursing based on family empowerment+routine nursing).The nutritional status(body moisture,protein,fat content,basal metabolic rate[BMR]),family care ability(assessed by family caregiver task inventory⁃25),motor function(assessed by Fugl⁃Meyer Assessment Scale[FMA]),quality of life(investigated by inventory of subjective life quality[ISLQ])and nursing satisfaction of family members were compared between the two groups.Results After intervention,the body moisture,protein and BMR in the observation group were higher than those in control group,while fat content in the observation group was lower than that in control group(P<0.05).The scores of family care ability in the observation group were lower than those in the control group(P<0.05).FMA score,ISLQ scores(cognition and emotions),and the degree of nursing satisfaction of family members in the observation group were higher than those in the control group(P<0.05).Conclusion Supervised follow⁃up nursing based on family empowerment can improve motor function,nutritional status,quality of life and family satisfaction in DMD children by enhancing care ability of family members.

关 键 词：杜氏肌营养不良症 家庭赋权 营养状况 照护能力 

分 类 号：R473[医药卫生—护理学]