The Challenges of Identifying and Managing Epistemic Inequalities in PHIR(Population Health Intervention Research):An Illustration in the Conception and Implementation of a TPE(Therapeutic Patient Education)Program in Oncology  

作　　者：Philippe Terral Charlotte Bruneau Jean-Paul Génolini 

机构地区：[1]CreSco,University of Toulouse,Toulouse,31000,France

出　　处：《Psycho-Oncologie》2023年第3期181-189,共9页肿瘤心理学（英文）

摘　　要：Aims:The joint dynamics of knowledge(of patients,health professionals,decision-makers,researchers)and of the powers(of speech and action,asymmetries,and hierarchies established between individuals and their knowledge)of the people who carry them at the heart of the PHIR,are analyzed from the perspective of the management of epistemic inequalities.We study the nature of knowledge sharing or non-sharing between these different categories of agents involved in health interventions.Procedure:The qualitative methodology is based on 36 interviews and six years of ethnographic observations of the TPE program(design or implementation),as well as steering committees and workshops of the PHIR where researchers,decisionmakers,health professionals,and patients share their experiences and knowledge.Results:The research highlights three major theoretical and methodological issues of PHIR concerning epistemic inequalities.We argue for broadening the spectrum of health expertise(researchers,decision-makers,health professionals,patients)and for their pluralization.To account for the nature and evolution of collaborations,it is necessary to closely study the dynamics of the avenues of coordination between these fields of expertise.Finally,we call to identify the resources(knowledge,values,material elements,etc.)and strengths that enable these hybrid groups to bind(or not)and to potentially generate co-learning.Conclusion:Considering these three major issues allows PHIR to reflect and take action to reduce inequalities by linking epistemic and social issues.

关 键 词：Epistemic inequalities intervention research theoretical issues methodological issues 

分 类 号：R730.5[医药卫生—肿瘤]