Mettre en dialogue disciplines et personnes concernées par le cancer pour améliorer le parcours des soins en oncologie Dialogue between Disciplines and People Affected by Cancer to Improve the Path of Care in Oncology  

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作  者:Joëlle Kivits Frédérique Claudot Sandrine de Montgolfier Silvia Rossi 

机构地区:[1]UniversitéParis Cité,ECEVE,UMR 1123,Inserm,Paris,75010,France [2]Universitéde Lorraine,UMR 1319,INSPIIRE,Inserm,Nancy,54500,France [3]Aix Marseille Univ,Inserm,IRD,SESSTIM,Chaire démocratie en santéet Engagement des personnes concernées par le Cancer,Marseille,13284,France

出  处:《Psycho-Oncologie》2024年第2期95-100,共6页肿瘤心理学(英文)

摘  要:Interdisciplinarity and participatory research have become the guiding principles of cancer research.But what are the practical forms and methods?Based on the experience of 3 successive research projects aimed at improving cancer care pathways-PARCA1,PARCA2 and 4P-we present the encounters between researchers on the one hand,and between these same researchers and patients and health professionals on the other.Gradually,these meetings have led to the co-construction of projects and the shared conduct of research.The motivations behind the participatory approach are highlighted,as well as the‘step-by-step’approach needed to familiarize the people involved with the research process,and the limits of the approach:while everyone’s position tends to be adjusted as the projects progress,there is still an imbalance between the researchers and the people involved.

关 键 词:Interdisciplinarity transdisciplinarity participatory research healthcare pathways 

分 类 号:R730.5[医药卫生—肿瘤]

 

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