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作 者:Joëlle Kivits Frédérique Claudot Sandrine de Montgolfier Silvia Rossi
机构地区:[1]UniversitéParis Cité,ECEVE,UMR 1123,Inserm,Paris,75010,France [2]Universitéde Lorraine,UMR 1319,INSPIIRE,Inserm,Nancy,54500,France [3]Aix Marseille Univ,Inserm,IRD,SESSTIM,Chaire démocratie en santéet Engagement des personnes concernées par le Cancer,Marseille,13284,France
出 处:《Psycho-Oncologie》2024年第2期95-100,共6页肿瘤心理学(英文)
摘 要:Interdisciplinarity and participatory research have become the guiding principles of cancer research.But what are the practical forms and methods?Based on the experience of 3 successive research projects aimed at improving cancer care pathways-PARCA1,PARCA2 and 4P-we present the encounters between researchers on the one hand,and between these same researchers and patients and health professionals on the other.Gradually,these meetings have led to the co-construction of projects and the shared conduct of research.The motivations behind the participatory approach are highlighted,as well as the‘step-by-step’approach needed to familiarize the people involved with the research process,and the limits of the approach:while everyone’s position tends to be adjusted as the projects progress,there is still an imbalance between the researchers and the people involved.
关 键 词:Interdisciplinarity transdisciplinarity participatory research healthcare pathways
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