成人全身型重症肌无力患者全病程护理专家共识(2024)  

Expert Consensus on Nursing for Adults with Generalized Myasthenia Gravis throughout the Entire Disease Course(2024)

作　　者：中华医学会神经病学分会护理协作组 许雅芳 薄琳[3] 邢介霞[4] 李慧娟[5] Nursing Cooperation Group of the Neurology Branch of the Chinese Medical Association;XU Ya-fang;BO Lin;XING Jie-xia;LI Hui-juan(Neursing Cooperation Group of the Neurology Branch of the Chinese Medical Association Beijing 100710,China;Department of Nursing,Huashan Hospital,Fudan University,National Center for Neurological Disorders,Huashan Rare Disease Center,Shanghai 200040,China;Department of Nursing,Peking Union Medical College Hospital,Chinese Academy of Medical Sciences,Beijing 100730,China;Department of Nursing,Qilu Hospital of Shandong University,Jinan 250012,China;Department of Nursing,the Third Affiliated Hospital of Sun Yat-sen University,Guangzhou 510275,China)

机构地区：[1]中华医学会神经病学分会护理协作组,北京100710 [2]复旦大学附属华山医院护理部,国家神经疾病中心,华山罕见病中心,上海200040 [3]中国医学科学院北京协和医院护理部,北京100730 [4]山东大学齐鲁医院护理部,济南250012 [5]中山大学附属第三医院护理部,广州510275

出　　处：《中国临床神经科学》2024年第5期577-586,共10页Chinese Journal of Clinical Neurosciences

基　　金：复旦大学附属华山医院临床研究基金(编号:2023-YN014)。

摘　　要：重症肌无力是神经肌肉接头传递障碍的获得性自身免疫性疾病,分为眼肌型和全身型。全身型重症肌无力患者的护理难度大,要求高,是重症肌无力专科护理的重点。但目前国内外还没有专家共识和指南对全身型重症肌无力患者的护理进行相关建议。为此,由中华医学会神经病学分会护理协作组牵头,从成人全身型重症肌无力患者在急性期护理、重症肌无力危象期的观察和护理、病情稳定期的康复护理三方面内容进行讨论并达成共识,形成14条推荐建议。为成人全身型重症肌无力患者的护理提供科学的参考依据。Myasthenia gravis is an acquired autoimmune disease with impaired neuromuscular junction transmission, which have two types: ocular and generalized myasthenia gravis. The care of patients with generalized myasthenia gravis is complex and demands specialized nursing for myasthenia gravis. However, there is no expert consensus or guidelines to report on caring for patients with generalized myasthenia gravis in hospital or at home. Therefore, the Nursing Collaboration Group of the Neurology Branch of the Chinese Medical Association took the lead in discussing and reaching a consensus on three aspects: acute care of adult generalized myasthenia gravis patients, observation and care during the myasthenia gravis crisis, and rehabilitation care during the stable period of the disease, and formed 14 recommendations. Provide a scientific reference for the care of adult generalized myasthenia gravis patients.

关 键 词：成人 全身型重症肌无力 全病程 护理 专家共识 

分 类 号：R746.1[医药卫生—神经病学与精神病学] R473.74[医药卫生—临床医学]