炎症性肠病青少年自我管理干预的证据总结  

Evidence summary for self-management interventions for adolescents with Inflammatory Bowel Disease

作　　者：朱杨帆 胡锦久 沈巧[1] 陆秋帆 万鑫 郑显兰[1] ZHU Yangfan;HU Jinjiu;SHEN Qiao;LU Qiufan;WAN Xin;ZHENG Xianlan(Department of Nursing,Children's Hospital of Chongqing Medical University,National Clinical Research Center for Child Health and Disorders,Ministry of Education Key Laboratory of Child Development and Disorders,Chongqing Key Laboratory of Pediatric Metabolism and Inflammatory Diseases,Chongqing,400014,China)

机构地区：[1]重庆医科大学附属儿童医院护理部,国家儿童健康与疾病临床医学研究中心,儿童发育疾病研究教育部重点实验室,儿童代谢与炎症性疾病重庆市重点实验室,重庆市400014

出　　处：《中国护理管理》2024年第12期1898-1904,共7页Chinese Nursing Management

基　　金：重庆市教委十四五重点学科支持项目(20240104)。

摘　　要：目的:评价和总结炎症性肠病青少年自我管理干预的相关证据,以期为临床实践提供依据。方法:系统检索国内外关于提升炎症性肠病青少年自我管理的指南、临床决策、专家共识、最佳实践、证据总结、系统评价和随机对照试验,并对纳入文献进行质量评价和证据提取,通过专家会议完善证据内容并确定证据推荐强度。结果:共纳入21篇文献,其中指南4篇、临床决策2篇、专家共识4篇、系统评价8篇、随机对照试验3篇,从干预原则、角色管理、疾病管理和心理管理4个方面汇总了31条证据。结论:本研究总结的炎症性肠病青少年自我管理干预证据能帮助临床和社区医护人员采取全面而有效的方法提高炎症性肠病青少年的自我管理能力。Objective:To evaluate and summarize the evidence related to self-management interventions for adolescents with Inflammatory Bowel Disease(IBD)with the aim of providing a basis for clinical practice.Methods:A systematic search was conducted for domestic and international guidelines,clinical decisions,expert consensus,recommended practices,evidence summaries,systematic reviews,and randomized controlled trials,on improving self-management in adolescents with IBD,and the quality of the included literature was evaluated and evidence was extracted,the content of the evidence was refined and the strength of the evidence recommendation was determined through an expert meeting.Results:Totally 21 literatures were included,including 4 guidelines,2 clinical decisions,4 expert consensus,8 systematic reviews,3 randomized controlled studies,and 31 pieces of evidence were summarized in 4 areas:principles of intervention,role management,disease management,and psychological management.Conclusion:The evidence for self-management interventions for adolescents with IBD summarized in this study can help clinical providers take a comprehensive and effective approach to improving their ability of self-management.

关 键 词：炎症性肠病 克罗恩病 溃疡性结肠炎 青少年 成年初期 自我管理 循证护理学 

分 类 号：R47[医药卫生—护理学] R197[医药卫生—临床医学]