肝豆状核变性患者感知健康能力水平现状及影响因素分析  

Current status of perceived health competence and related influencing factors in patients with hepatolenticular degeneration

作　　者：程春香 汪世靖 金艳 沈洁 万金凤 胡文彬 CHENG Chunxiang;WANG Shijing;JIN Yan(The Affiliated Hospital of the Neurology Institute of Anhui University of Chinese Medicine,Hefei 230061,China)

机构地区：[1]安徽中医药大学神经病学研究所附属医院,安徽合肥230061

出　　处：《中风与神经疾病杂志》2025年第1期9-12,共4页Journal of Apoplexy and Nervous Diseases

基　　金：安徽中医药大学科研基金项目(2021sfy1c03);安徽省高等学校科学研究项目(2023AH04104)。

摘　　要：目的 调查肝豆状核变性、也称Wilson病(WD)患者感知健康能力的水平及其影响因素。方法 采用便利抽样法选取2021年1月—2023年12月就诊于安徽中医药大学神经病学研究所附属医院的WD患者60例,作为本研究的对象,使用一般资料调查表、感知健康能力量表、健康素养量表、领悟社会支持量表以及感知控制量表等工具分析影响WD患者感知健康能力影响因素。结果 WD患者感知健康能力总分(25.85±5.03),结果期望评分(12.12±3.55),行为期望评分(13.73±3.33);多因素分析显示:文化程度、健康素养评价为WD患者感知健康能力的影响因素。结论 WD患者感知健康能力呈现中等水平,受文化程度、健康素养评价等因素影响。Objective To investigate the level of perceived health competence in patients with hepatolenticular degeneration,also known as Wilson disease(WD),as well as related influencing factors.Methods From January to December 2023,the convenience sampling method was used to select 60 patients with WD as the subjects for this study among the patients who were hospitalized in The Affiliated Hospital of the Neurology Institute of Anhui University of Chinese Medicine,and General Information Questionnaire,Perceived Health Competence Scale,Health Literacy Scale,Perceived Social Support Scale,and Perceived Control Scale were used to investigate the influencing factors for perceived health competence in patients with WD.Results The total score of perceived health competence was(25.85±5.03)in the patients with WD,with an outcome expectancy score of(12.12±3.55)and a behavioral expectancy score of(13.73±3.33),and the multivariate analysis showed that degree of education and health literacy assessment were influencing factors for perceived health competence in the patients with WD.Conclusions There is a moderate level of perceived health competence in patients with WD,which is influenced by the factors such as degree of education and health literacy assessment.

关 键 词：肝豆状核变性 WILSON病 感知健康能力 感知控制 领悟社会支持 

分 类 号：R742.4[医药卫生—神经病学与精神病学]