基于CiteSpace的儿童罕见病护理研究可视化分析  

Visual analysis of research on pediatric rare disease nursing based on CiteSpace

作　　者：张珺钰 冯瑶 孙静[2] 李杨[1] Zhang Junyu;Feng Yao;Sun Jing;Li Yang(School of Nursing,Chinese Academy of Medical Sciences&Peking Union Medical College,Beijing 100144,China;Department of Pediatrics,Peking Union Medical College Hospital,Chinese Academy of Medical Sciences,Beijing 100730,China)

机构地区：[1]中国医学科学院北京协和医学院护理学院,北京100144 [2]中国医学科学院北京协和医院儿科病房,北京100730

出　　处：《中华现代护理杂志》2025年第6期758-765,共8页Chinese Journal of Modern Nursing

摘　　要：目的对国外儿童罕见病护理领域的研究现况、热点及发展趋势进行可视化分析。方法检索Web of Science核心合集数据库中2004年1月—2023年12月收录的与儿童罕见病护理相关的文献,采用CiteSpace软件对文献年发文量、发文国家、机构、作者、关键词等进行可视化分析。结果共纳入252篇英文文献,国外儿童罕见病护理研究呈现持续增长态势。当前美国、德国发文量较多,但各国机构间合作分散,尚未形成核心作者群。研究热点关键词为生活质量、青少年、照顾者;罕见病青少年过渡期护理、多学科团队管理及数字健康技术是近些年研究趋势。结论国外儿童罕见病护理领域研究稳步发展,我国护理研究者可通过关注当前研究热点、挖掘最新研究动态,提高我国儿童罕见病护理研究能力。Objective To conduct a visual analysis of the current status,hotspots,and development trends in the field of pediatric rare disease nursing internationally.MethodsA search was conducted in the Web of Science Core Collection database for literature related to pediatric rare disease nursing published between January 2004 and December 2023.CiteSpace software was used to perform a visual analysis of publication trends,countries,institutions,authors,keywords,and other relevant data.ResultsA total of 252 English papers were included,showing a sustained increase in research on pediatric rare disease nursing.The United States and Germany had the highest publication volumes,but there was little collaboration between institutions in different countries,and no core group of authors had formed.The current research hotspots include quality of life,adolescents,and caregivers.Recent research trends were transitional care for adolescents with rare diseases,multidisciplinary team management and digital health technologies.ConclusionsResearch in the field of pediatric rare disease nursing is steadily developing internationally.Chinese nursing researchers can enhance the capacity of pediatric rare disease nursing research by focusing on current research hotspots and exploring the latest research trends.

关 键 词：儿童 罕见病 护理 可视化分析 

分 类 号：R473.72[医药卫生—护理学] G353.1[医药卫生—临床医学]