10-19岁慢性病患者向成人过渡期准备度评估工具的系统评价  

A systematic review of tools for assessing the readiness of patients with chronic diseases aged 10-19 to transition to adulthood

作　　者：王飒 苗华丽[2] 李雨蔚 王鸿伟 乔彩彩 宋炜婷 WANG Sa;MIAO Huali;LI Yuwei;WANG Hongwei;QIAO Caicai;SONG Weiting

机构地区：[1]山西医科大学护理学院,太原市030001 [2]山西医科大学第三医院,山西白求恩医院(山西医学科学院),同济山西医院护理部 [3]山西中医药大学护理学院

出　　处：《中华护理杂志》2025年第4期469-477,共9页Chinese Journal of Nursing

基　　金：山西省卫生健康委科研课题(2022149)。

摘　　要：目的对国内外10~19岁青少年慢性病患者向成人过渡期准备度评估工具进行系统评价,为医护人员选择合适的工具提供参考。方法系统检索中国知网、万方数据库、中国生物医学文献服务系统、PubMed、Web of Science、Embase和Cochrane Library,收集青少年慢性病患者向成人过渡期准备度评估工具相关文献,检索时限为建库至2024年8月。由2名研究者独立筛选文献、提取资料,并使用基于共识的健康测量工具遴选标准对评估工具进行系统评价,形成推荐意见。结果纳入29篇文献,共涉及9项普适性评估工具和5项特异性评估工具。其中,过渡准备评估问卷的结构效度和内部一致性评价为“充分”,为A级推荐;“我准备好过渡到成人护理了吗”调查问卷、过渡期状态评估问卷、癫痫患者过渡准备评估量表和风湿病成人护理准备情况评估工具为C级推荐,其余工具均为B级推荐。结论青少年慢性病患者向成人过渡期准备度评估工具较多,推荐使用过渡准备评估问卷,其余工具仍需进一步验证。Objective To systematically evaluate the assessment tools of adolescent chronic disease patients’transition readiness to adults at home and abroad,and to provide references for medical personnel to choose appropriate tools.Methods CNKI,Wan Fang Data,CBM,PubMed,Web of Science,Embase and Cochrane were searched for literature related to the assessment tools of transition readiness in adolescents with chronic illnesses to adulthood from inception to August,2024.Literature screening and data extraction of the tools were extracted independently by 2 researchers.At the same time,the criteria for the selection of health measurement tools based on consensus(COSMIN)systematic evaluation guidelines were used to evaluate the inclusion assessment tools,and recommendations were finally formed.Results A total of 29 articles were included,involving 9 universal and 5 specific assessment tools of adolescent chronic illnesses transition readiness.The Transition Readiness Assessment Questionnaire has satisfactory content validity and internal consistency,and it is recommended as Grade A.The Grade C included the Am I ON TRAC for adult care?Questionnaire and the State Assessment Questionnaire for Transition,Epilepsy-specific Transition Readiness Assessment Questionnaire and the Readiness for Adult Care in Rheumatology,while the others are recommended as Grade B.Conclusion There are a variety of tools to assess the transition readiness of adolescents with chronic diseases to adults,and there are few tools suitable for adolescents with chronic diseases in China,with few specific tools.After comprehensive consideration,the Transition Readiness Assessment Questionnaire can be recommended temporarily.

关 键 词：青少年 慢性病 过渡期准备 评估工具 测量学特性 系统评价 儿科护理学 

分 类 号：R473[医药卫生—护理学]