国家儿童肿瘤监测平台构建与应用  

Construction and application of national pediatric cancer surveillance platform

作　　者：徐新[1,4] 李哲 刘原虎 张啸[2] 白国良 李新平 刘莹颖 杨卓煜 倪鑫 Xu Xin;Li Zhe;Liu Yuanhu;Zhang Xiao;Bai Guoliang;Li Xinping;Liu Yingying;Yang Zhuoyu;Ni Xin(Informatin Center,Beijing Children′s Hospital,Capital Medical University,National Center for Children′s Health,Beijing 100045,China;National Center for Pediatric Cancer Surveillance,Beijing Children′s Hospital,Capital Medical University,National Center for Children′s Health,Beijing 100045,China;Department of Otorhinolaryngology Head and Neck Surgery,Beijing Children′s Hospital,Capital Medical University,National Center for Children′Health,Beijing 100045,China;School of Instrumention and Optoelectronic Engineering,Beihang University)

机构地区：[1]国家儿童医学中心、首都医科大学附属北京儿童医院信息中心,北京100045 [2]国家儿童医学中心、首都医科大学附属北京儿童医院国家儿童肿瘤监测中心,北京100045 [3]国家儿童医学中心、首都医科大学附属北京儿童医院耳鼻咽喉头颈外科,北京100045 [4]北京航空航天大学仪器科学与光电工程学院

出　　处：《中华医院管理杂志》2024年第12期917-922,共6页Chinese Journal of Hospital Administration

基　　金：北京市研究型病房示范建设项目(BCRW202101);首都医科大学附属北京儿童医院研究平台专项课题(YPT202001)。

摘　　要：2019年,国家儿童肿瘤监测中心基于分层设计和面向服务的理念及微服务架构,构建了国家儿童肿瘤监测平台(以下简称监测平台),其架构包括文件存储层、数据存储层、服务层、应用层和可视化层。该平台支持自动采集、文件导入和手工填报3种数据上报方式,并通过规则质控和流程质控保障数据质量。同时,在安全域、权限管理和数据脱敏等方面制定了严格的安全措施,确保监测数据安全可靠。截至2024年11月,监测平台已覆盖1750家监测点(医院),采集儿童肿瘤病例信息600万条,取得良好成效,为国家儿童肿瘤监测工作奠定了坚实的基础,并为我国儿童肿瘤防控工作提供全面、科学和精准的大数据支撑。未来,监测平台性能需持续优化升级,进一步整合业内相关数据集,并借助大语言模型等前沿技术,积极探索创新的应用场景。To provide comprehensive,scientific,and precise big data supports for national pediatric cancer prevention and control,the National Center for Pediatric Cancer Surveillance constructed the Surveillance Platform in 2019.Based on stratified and service-oriented design concepts,and a microservices architecture,the platform constructed five layers:document storage,data storage,service,application,and visualization.The platform supported three data reporting methods:automatic collection,file import,and manual entry.It ensured data quality through both rule-based and process-based quality control measures.Additionally,strict data security measures had been established in areas such as security domains,permission management,and data de-identification to ensure the safety and reliability of the monitoring data.As to November 2024,the platform had covered 1750 surveillance sites(hospitals)and collected information about 6 million pediatric cancer cases,achieving positive results.This practice had laid a solid foundation for the smooth implementation of national pediatric cancer surveillance work and provided scientific evidences for pediatric cancer prevention and control in China.In the future,the platform′s performance needs to be continuously optimized and upgraded.It should further integrate relevant datasets in this field and actively explore and expand new application scenarios with the help of cutting-edge technologies such as big language models.

关 键 词：儿童肿瘤 监测平台 平台架构 数据采集 数据安全 

分 类 号：TP274[自动化与计算机技术—检测技术与自动化装置] TP311.13[自动化与计算机技术—控制科学与工程] R73-31[医药卫生—肿瘤]