孤独症谱系障碍儿童家长自我中心社会网络问卷的编制和信效度检验  

Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder

作　　者：潘圆圆 刘倩琦[2] 梁旻璐 吴丹丹[2] 林枫 PAN Yuanyuan;LIU Qianqi;LIANG Minlu;WU Dandan;LIN Feng(School of Rehabilitation Medicine Nanjing Medical University,Nanjing,Jiangsu 210029,China;Children's Hospital of Nanjing Medical University,Nanjing,Jiangsu 210008,China)

机构地区：[1]南京医科大学康复医学院,江苏南京210029 [2]南京医科大学附属儿童医院,江苏南京210008

出　　处：《康复学报》2025年第1期30-35,共6页Rehabilitation Medicine

基　　金：江苏省妇幼健康研究会研究课题(JSFY202301)。

摘　　要：目的 初步编制可供中国孤独症谱系障碍(ASD)儿童家长使用的自我中心社会网络问卷并检验其信效度,便于评估家长的社会网络与后续研究。方法 采用便利样本取样的方式,选取2022年8月—2024年3月在南京医科大学附属儿童医院儿童保健科就诊的123例ASD儿童家长作为研究对象。采用一般资料调查表、自我中心社会网络问卷和领悟社会支持量表对其进行调查。由经过统一培训的康复治疗师和心理治疗师指导家长填写问卷。自我中心社会网络问卷采用提名生成法和提名诠释法来设计。问卷首先要求家长提名教养孩子的过程中可获得支持的人,再回答与被提名人相关的其他问题,如网络规模、互动频率、地理距离、满意程度和支持类型。问卷根据家长与被提名人的社会关系远近设定权重值并计分。采用Cronbach's α系数、McDonald'sω系数对自我中心社会网络问卷进行信度验证;以领悟社会支持量表作为校标,采用Pearson相关性分析评价自我中心社会网络问卷的效度。结果 ASD儿童家长自我中心社会网络问卷的信效度良好,问卷总分Cronbach's α系数为0.914,网络规模Cronbach's α系数为0.937,互动频率Cronbach's α系数为0.861,地理距离Cronbach's α系数为0.886,满意程度Cronbach's α系数为0.874,支持类型Cronbach's α系数为0.895。问卷总分McDonald'sω系数为0.964。自我中心社会网络问卷的网络规模、互动频率、地理距离、支持类型、满意程度和社会网络总分与领悟社会支持总分的Pearson相关系数r值分别为0.51、0.52、0.49、0.58、0.49、0.56,P均<0.001,具有强相关性。结论 ASD儿童家长的自我中心社会网络问卷具有良好的信效度,问卷评估方法简单且耗时较少,具有良好的实操性和实用性,可以作为中国ASD儿童家长社会网络的评估工具。但仍需扩大样本并进一步完善问卷,以供后续研究推广应用。Objective An egocentric social network questionnaire for parents of children with autism spectrum disorder(ASD)in China was preliminarily developed and tested for its reliability and validity,so as to facilitate the evaluation of parents'social networks and follow-up research.Methods A convenience sample of 123 parents of children with ASD who visited the Department of Child Health at Children's Hospital of Nanjing Medical University,from August 2022 to March 2024 were selected as the study subjects.The general data questionnaire,egocentric social network questionnaire and perceived social support scale were used to conduct the survey.Trained rehabilitation therapists and psychotherapists guided parents filled out the questionnaires.The egocentric social network questionnaire was designed using nomination generation and nomination interpretation methods.The questionnaire first required parents to nominate people who supported them in raising their children,and then answer other questions related to the nominated persons,such as network size,interaction frequency,geographic distance,satisfaction level,and type of support.The questionnaire assigned weight values based on the social relationship distance between parents and the nominated persons and scored the answers.Cronbach'sαcoefficient and McDonald'sωcoefficient were used to verify the reliability of the egocentric social network questionnaire.With perceived social support scale as the criterion,Pearson correlation analysis was used to evaluate the validity of the egocentric social network questionnaire.Results The egocentric social network questionnaire for parents of children with ASD showed good reliability and validity.The Cronbach'sαcoefficient was 0.914 for the total score of the questionnaire,0.937 for the network size,0.861 for the interaction frequency,0.886 for the geographic distance,0.874 for the satisfaction level,and 0.895 for the type of support.The McDonald'sωcoefficient for the total score of the questionnaire was 0.964.The Pearson correlat

关 键 词：孤独症谱系障碍 儿童家长 社会网络问卷 社会支持 问卷编制 信效度 

分 类 号：R749.94[医药卫生—神经病学与精神病学]