1例色素失禁症新生儿的护理  

Nursing of a newborn with incontinentia pigmenti

作　　者：徐雅静 杨婷[1] XU Yajing;YANG Ting(The Second Department of Neonatology,Gansu Provincial Maternity and Child-care Hospital(Gansu Provincial Central Hospital),Gansu Province,Lanzhou 730000,China)

机构地区：[1]甘肃省妇幼保健院(甘肃省中心医院)新生儿科二部,甘肃兰州730000

出　　处：《妇儿健康导刊》2025年第6期157-160,共4页JOURNAL OF WOMEN AND CHILDREN'S HEALTH GUIDE

摘　　要：色素失禁症又称BlocK-Sulzberger综合征,是一种以红斑、水疱、疣状损害及色素沉着为特征,常伴有眼、骨骼和中枢神经系统畸形的复合遗传性皮肤病。本文对1例色素失禁症新生儿的资料进行回顾性分析,总结该病的临床特点、治疗方法及护理措施。其中,护理措施主要包括皮肤管理、消毒隔离、疼痛管理、病情观察、健康教育等。患儿30 d后治愈出院。Incontinentia pigmenti,also known as BlocK-Sulzberger syndrome,is a complex genetic skin disease characterized by erythema,blisters,verrucous lesions,and pigmentation,often accompanied by eyes,bones,and central nervous system malformations.In this paper,the data of a newborn with incontinentia pigmenti were retrospectively analyzed,and the clinical characteristics,treatment,and nursing measures of the disease were summarized.Among them,nursing measures mainly included skin management,disinfection and isolation,pain management,disease condition observation,health education and other.The child was cured and discharged from hospital after 30 days.

关 键 词：色素失禁症 新生儿 护理 

分 类 号：R473.72[医药卫生—护理学]