孤独症患儿家庭抗逆力现状及其影响因素分析  

Current status and influencing factors of family resilience in children with autism

作　　者：丁丹丹 朱义如 徐海萍[1] 杜晓艳[1] 李雪函 黄丽洁 Ding Dandan;Zhu Yiru;Xu Haiping;Du Xiaoyan;Li Xuehan;Huang Lijie(Department of Child Developmental Behavior,the Third Affiliated Hospital of Zhengzhou University,Zhengzhou 450052,China)

机构地区：[1]郑州大学第三附属医院儿童发育行为科,郑州450052

出　　处：《中国实用护理杂志》2025年第10期754-759,共6页Chinese Journal of Practical Nursing

摘　　要：目的了解孤独症患儿家庭抗逆力现状并探讨其影响因素,为制订孤独症患儿家庭抗逆力的干预措施提供依据。方法便利抽样法选取2023年3—9月在郑州大学第三附属医院儿童发育行为科进行康复训练的孤独症患儿及照顾者为研究对象。采用一般资料调查表、中文版家庭抗逆力量表、中文版养育倦怠量表及照顾者压力量表进行横断面调查。结果共发放问卷280份,回收有效问卷271份。271例孤独症患儿中男210例,女61例,年龄3~5岁居多,为169例;271名照顾者中男21名,女250名,年龄30~39岁居多,为149名。孤独症患儿中文版家庭抗逆力量表总分为(70.59±14.08)分,家庭沟通和问题解决维度得分为(49.96±10.23)分,社会资源利用维度得分为(7.13±1.62)分,保持积极态度维度得分为(13.52±3.31)分。多元线性回归结果显示,患儿年龄、病程、报销方式、养育倦怠、照顾压力是孤独症患儿家庭抗逆力的影响因素(t值为-10.40~3.48,均P<0.05)。结论孤独症患儿家庭抗逆力水平有待提高,养育倦怠水平越高,照顾压力越大,其家庭抗逆力水平越低。未来可参照影响因素制订孤独症患儿家庭抗逆力的干预措施,促进孤独症患儿及照顾者身心健康。Objective To understand the current status of family resilience in children with autism and explore its influencing factors,providing a basis for developing intervention measures to improve family resilience in these families.MethodsConvenience sampling was used to select children with autism and their caregivers who underwent rehabilitation training at the Department of Child Developmental Behavior,Third Affiliated Hospital of Zhengzhou University from March to September 2023.A cross-sectional survey was conducted using a general information questionnaire,the Chinese version of the Family Resilience Assessment Scale,the Chinese version of the Parenting Burnout Scale,and the Caregiver Stress Scale.ResultsA total of 280 questionnaires were distributed,and 271 valid questionnaires were collected.Among the 271 children with autism,210 were male and 61 were female,with the majority aged 3-5 years old(169 cases).Among the 271 caregivers,21 were male and 250 were female,with the majority aged 30-39 years old(149 cases).The total score of the Chinese version of the Family Resilience Assessment Scale was(70.59±14.08)points,with scores of(49.96±10.23)points for family communication and problem-solving,(7.13±1.62)points for social resource utilization,and(13.52±3.31)points for maintaining a positive attitude.Multiple linear regression analysis showed that the child′s age,disease duration,reimbursement method,parenting burnout,and caregiver stress were influencing factors of family resilience in children with autism(t values were-10.40-3.48,all P<0.05).ConclusionsThe level of family resilience in children with autism needs improvement.Higher levels of parenting burnout and caregiver stress are associated with lower levels of family resilience.Future interventions should be developed based on these influencing factors to promote the physical and mental health of children with autism and their caregivers.

关 键 词：孤独症患儿 家庭抗逆力 影响因素分析 

分 类 号：R749.94[医药卫生—神经病学与精神病学]