健康数据空间框架构建与推进策略研究  

Framework Construction and Promotion Strategies of Health Data Spaces

作　　者：沈丽宁[1,2,3] 满亚荣 陈思思 辛杰 丁吴楠 邓雨 毛嘉鑫 SHEN Lining;MAN Yarong;CHEN Sisi;XIN Jie;DING Wunan;DENG Yu;MAO Jiaxin(School of Medicine and Health Management,Tongji Medical College of Huazhong University of Science and Technology,Wuhan 430030,China;Hubei Provincial Research Center for Health Technology Assessment,Wuhan 430030,China;Research Center for Big Data&Data Science in Health and Healthcare,Tongji Medical College of Huazhong University of Science and Technology,Wuhan 430030,China)

机构地区：[1]华中科技大学同济医学院医药卫生管理学院,武汉430030 [2]湖北省卫生技术评估研究中心,武汉430030 [3]华中科技大学同济医学院健康医疗大数据科学研究中心,武汉430030

出　　处：《医学信息学杂志》2025年第3期8-14,共7页Journal of Medical Informatics

基　　金：中央高校基本科研业务费资助项目(项目编号:2023WKYXZX003)。

摘　　要：目的/意义把握健康数据空间发展机遇,为健康医疗产业高质量发展和数据价值释放提供实践启示和政策参考。方法/过程通过文献回顾和政策分析,系统梳理国内外健康数据空间建设进展,构建健康数据空间框架,分析其组成要素,剖析数据资源和数据主体交互过程,提出健康数据空间建设推进策略。结果/结论 该框架包括健康数据空间技术支持、数据资源、数据主体、规则机制、应用场景5大组成要素,从应用场景出发探讨健康医疗数据的3次价值释放,并从顶层设计、隐私保护、产品开发、数据素养与人才队伍等方面提出健康数据空间建设的推进策略。Purpose/Significance To seize the development opportunities of the health data space,so as to provide practical insights and policy references for the high-quality development of the health and medical industry and the release of data value.Method/Process Through literature review and policy analysis,the paper systematically reviews the progress of health data space construction both domestically and internationally.A health data space framework is constructed,its key components are analyzed,and strategies for the advancement of health data space construction are proposed.Result/Conclusion The framework comprises 5 major components:technical support,data resources,data subjects,regulatory mechanisms,and application scenarios.From the perspective of application scenarios,the paper discusses the 3-fold release of the value of health and medical data.It proposes strategies for advancing the construction of the health data space,focusing on top-level design,privacy protection,product development,data literacy,and talent development.

关 键 词：健康医疗数据 数据空间 数据流通 数据利用 数据要素 

分 类 号：R-058[医药卫生]