基于扎根理论的先天性胫骨假关节患儿家庭抗逆力发展过程研究  

Development process of family resilience in children with congenital pseudarthrosis of the tibia based ongrounded theory

作　　者：殷兰 谢鑑辉 龙佳玲 徐乐 王兰英 欧阳雅琦 易银芝 谷灿[4] Yin Lan;Xie Jianhui;Long Jialing;Xu Le;Wang Lanying;Ouyang Yaqi;Yi Yinzhi;Gu Can(School of Nursing,University of South China,Hengyang 421001,China;Hospital Administration Ofice,Hunan Children's Hospital(Affiliated Children's Hospital of Xiangya School of Medicine,Central South University),Changsha 410007,China;Key Laboratory of Pediatric Orthopedics of Hunan Province,Hunan Children's Hospital(Affiliated Children's Hospital of Xiangya School of Medicine,Central South University),Changsha 410007,China;Xiangya School of Nursing,Central South University,Changsha 410008,China)

机构地区：[1]南华大学护理学院,衡阳421001 [2]湖南省儿童医院(中南大学湘雅医学院附属儿童医院)院长办公室,长沙410007 [3]湖南省儿童医院(中南大学湘雅医学院附属儿童医院)儿童骨科学湖南省重点实验室,长沙410007 [4]中南大学湘雅护理学院,长沙410008

出　　处：《中华现代护理杂志》2025年第12期1599-1604,共6页Chinese Journal of Modern Nursing

基　　金：国家临床重点专科重大科研专项(20230098);湖南省自然科学基金(2024JJ9345)。

摘　　要：目的探讨先天性胫骨假关节(CPT)患儿家庭抗逆力的发展过程,了解疾病给患儿家庭带来的长期挑战及应对对策。方法通过目的抽样和理论抽样结合的方式,选取湖南省儿童医院收治的CPT患儿照顾者15名进行半结构式访谈,采用扎根理论方法对访谈结果进行分析。结果CPT患儿的家庭抗逆力发展经历了3个阶段:形成前阶段、产生阶段和维持阶段。在面对负面情绪和家庭挑战时,照顾者首先需要重建内在信念,随后通过调整家庭组织模式、采用开放和包容的沟通方式,并积极寻求外部支持,以促进家庭抗逆力的发展。最终,照顾者能够自我调节情绪,积累疾病照顾经验,并开始转变人生观。结论CPT患儿家庭抗逆力的发展是一个多因素相互作用的动态多阶段过程。医护人员应根据家庭的不同阶段提供专业健康指导。此外,政府和学校也应加强关注和支持,与家庭、医护人员等多方共同努力,以促进CPT患儿的家庭抗逆力提升。Objective To explore the development process of family resilience in children with congenital pseudarthrosis of the tibia(CPT)and to understand the long-term challenges and coping strategies that CPT imposes on the families of affected children.Methods This study combined purposive sampling and theoretical sampling.It selected 15 caregivers of CPT children from Hunan Children's Hospital for semi-structured interviews.Grounded theory was used to analyze the interview results.Results The development of family resilience in CPT children's families occurred in three stages:pre-formation stage,formation stage,and maintenance stage.In facing negative emotions and family challenges,caregivers first needed to rebuild their inner beliefs.They then adjusted the family organizational model,adopted open and inclusive communication,and actively sought external support to foster the development of family resilience.Ultimately,caregivers were able to self-regulate their emotions,accumulate caregiving experience,and begin to shift their life perspective.Conclusions The development of family resilience in CPT children's families is a dynamic,multi-stage process with interactions of multiple factors.Healthcare providers should offer professional health guidance according to the different stages of family development.Moreover,the government and schools should increase their attention and support,working together with families and healthcare providers to enhance family resilience forchildren with CPT.

关 键 词：先天性骨假关节 家庭抗逆力 扎根理论 照顾者 

分 类 号：R473.72[医药卫生—护理学]