Findings from a social media listening study on Chinese patients with Alzheimer's disease:a content analysis  

作　　者：Nan Zhi Yongtian Zhang Wenwei Cao Jinwen Xiao Jianping Li Haixia Li Xinyi Xie Rujing Ren Jieli Geng Gang Wang 

机构地区：[1]Department of Neurology,Renji Hospital,Shanghai Jiao Tong University School of Medicine,Shanghai,China [2]Department of China Drug Development,Lundbeck(Beijing)Pharmaceutical Consulting Co,Beijing,China [3]Department of Neurology and Institute of Neurology,Ruijin Hospital,Shanghai Jiao Tong University School of Medicine,Shanghai,China

出　　处：《General Psychiatry》2025年第1期55-62,共8页综合精神医学(英文)

基　　金：funded by the Ministry of Science and Technology of the People's Republic of China(2021ZD0201804,GW).

摘　　要：Background Social media listening is a new approach for gathering insights from social media platforms about users experiences.This approach has not been applied to analyse discussions about Alzheimer's disease(AD)in China.Aims We aimed to leverage multisource Chinese data to gain deeper insights into the current state of the daily management of Chinese patients with AD and the burdens faced by their caregivers.Methods We searched ninemainstreampublic onlineplatforms in China fromSeptember2010 to March 2024.Natural language processing tools were used to identify patients and caregivers,and categorise patients by disease stage forfurther analysis.We analysed the current state of patient daily management,including diagnosis and treatment,choice oftreatment scenarios,patient safetyand caregiverconcerns.Results Atotal of 1211patientswithAD(66% female,82% aged 60-90)and 756caregiversfor patients with AD were identified from 107556 online sources.Most patients were derived from online consultation platforms(43%),followed by bulletin board system platforms(24%).Among the patients categorised into specific disease stages(n=382),42% were in the moderate stage.The most frequent diagnostic tools included medical history(97%)and symptoms(84%).Treatment options for patients with AD primarily included cholinesterase inhibitors,N-methyl-D-aspartate receptor antagonists and antipsychotics.Both quantitative and qualitative analysis of patients whoexperiencedwandering(n=92)indicated a higher incidence of wandering during the moderate stage of the disease.Most caregivers were family members,with their primary concerns focusing on disease management and treatment(90%),followed by daily life care(37%)and psychosocial support(25%).Conclusions Online platform data provide a broad spectrum of real-world insights into individuals affected byAD in China.This study enhances our understanding of the experiences of patients with AD and their caregivers,providing guidance for developing personalised interventions,providing advicefor caregiver

关 键 词：gathering insights social media platforms content analysis alzheimers disease ad ninemainstreampublic onlineplatforms Alzheimers disease analyse discussions CAREGIVERS social media listening 

分 类 号：R749.1[医药卫生—神经病学与精神病学]