You Need to Know More to Understand My Scoring on the Survey: Free-Text Comments as Part of a PROM-Survey of Men with Prostate Cancer  

作　　者：Senada Hajdarevic Birgit H. Rasmussen Per Fransson Senada Hajdarevic;Birgit H. Rasmussen;Per Fransson(Department of Nursing, Umeå University, Umeå, Sweden;Department of Health Sciences, Lund University, Lund, Sweden)

机构地区：[1]Department of Nursing, Umeå University, Umeå, Sweden [2]Department of Health Sciences, Lund University, Lund, Sweden

出　　处：《Open Journal of Nursing》2016年第5期365-375,共11页护理学期刊（英文）

摘　　要：Prostate cancer and its treatment have long-term implications for men’s lives. We aimed to describe the content, extent, and frequency of written comments to the open-ended question, “Further comments?” in the patient-reported outcome measures questionnaire. During the study period, 897 men participated;372 wrote 747 free-text comments in the questionnaire. These comments were analysed using qualitative content analysis and were grouped into four categories: 1) prostate cancer’s influence on health;2) clarifications of answers to the survey;3) descriptions of well-being despite the cancer;and 4) experiences of care and the need for contact with health care. The distribution of the comments shifted over time. The open-ended question not only allowed the participants to explain their other responses and describe important aspects of their lives during and after treatment, something not normally covered by a questionnaire, but it also indicated their experiences of health care services along the patients’ PC-trajectory. This further raises the issue of including an open-ended item in a forced-choice survey into the ethical realm to ensure that proper care is taken of participants’ answers and thoughts.Prostate cancer and its treatment have long-term implications for men’s lives. We aimed to describe the content, extent, and frequency of written comments to the open-ended question, “Further comments?” in the patient-reported outcome measures questionnaire. During the study period, 897 men participated;372 wrote 747 free-text comments in the questionnaire. These comments were analysed using qualitative content analysis and were grouped into four categories: 1) prostate cancer’s influence on health;2) clarifications of answers to the survey;3) descriptions of well-being despite the cancer;and 4) experiences of care and the need for contact with health care. The distribution of the comments shifted over time. The open-ended question not only allowed the participants to explain their other responses and describe important aspects of their lives during and after treatment, something not normally covered by a questionnaire, but it also indicated their experiences of health care services along the patients’ PC-trajectory. This further raises the issue of including an open-ended item in a forced-choice survey into the ethical realm to ensure that proper care is taken of participants’ answers and thoughts.

关 键 词：Prostate Cancer QUESTIONNAIRE Open-Ended Question Information Feedback Quality of Life Nursing 

分 类 号：R73[医药卫生—肿瘤]