经验交流癫痫患者手机APP管理模式初探  

An exploration of the epileptic patients management mode through mobile phone APP

作　　者：门欣怡 王萌[2] 李文玲[1,2] 王秀霞 王维平[1,3] 卢艳 贾丽景[1,3] 郑华城 孙素真[1,5] 王荣 孙艳红[1,6] 李艳敏 杨立波[7] 刘桂玲 任淑红[10] 万莉 董长征[12] 刘新平 MEN Xinyi;WANG Meng;LI Wenling;WANG Xiuxia;WANG Weiping;LU Yan;JIA Lijing;ZHENG Huacheng;SUN Suzhen;WANG Rong;SUN Yanhong;LI Yanmin;YANG Libo;LIU Guiling;REN Shuhong;WAN Li;DONG Changzheng;LIU Xinping(Hebei Association Against Epilepsy,Shijiazhuang 050000,China;Neurosurgery epilepsy major,the Second Hospital Of Hebei Medical University,Shijiazhuang 050000,China;Department of Neurology,the Second Hospital Of Hebei Medical University,Shijiazhuang 050000,China;Pediatric Departmen,the Second Hospital Of Hebei Medical Universityt,Shijiazhuang 050000,China;Pediatric Neurology Department,Hebei Children’s Hospital,Shijiazhuang 050000,China;Pediatric Neurology Department,Cangzhou Central Hospital,Cangzhou 061000,China;Department of Neurology,Cangzhou People’s Hospital,Cangzhou 061000,China;9 Department of Neurology,the First Hospital Of Hebei Medical University,Shijiazhuang 050000,China;Pediatric Department,the First Hospital Of Hebei Medical University,Shijiazhuang 050000,China;Pediatric Department,Baoding Children’s Hospital,Baoding 071000,China;Department of Neurology,Baoding First Central Hospital,Baoding 071000,China;Department of Neurosurgery,Hebei General Hospital,Shijiazhuang 050000,China;Department of Neurology,Handan Central Hospital,Handan 056000,China)

机构地区：[1]河北省抗癫痫协会,石家庄050000 [2]河北医科大学第二医院神经外科癫痫专业,石家庄050000 [3]河北医科大学第二医院神经内科,石家庄050000 [4]河北医科大学第二医院儿科,石家庄050000 [5]河北省儿童医院小儿神经内科,石家庄050000 [6]沧州市中心医院小儿神经内科,沧州061000 [7]沧州市人民医院神经内科,沧州061000 [8]河北医科大学第一医院神经内科,石家庄050000 [9]河北医科大学第一医院儿科,石家庄050000 [10]保定市儿童医院儿科,保定071000 [11]保定市第一中心医院神经内科,保定071000 [12]河北省人民医院神经外科,石家庄050000 [13]邯郸市中心医院神经内科,邯郸056000

出　　处：《癫痫杂志》2021年第2期133-135,共3页Journal of Epilepsy

摘　　要：为了促进河北省癫痫的诊疗管理水平,提高癫痫病患者生活质量。河北省抗癫痫协会通过手机APP,就疾病诊断、药物添加治疗及其疗效进行了多中心的临床数据分析研究。通过“核桃仁”健康管理平台对收集的临床数据进行总结分析,河北省的癫痫综合征的诊断率在半年内已从21%提升至39%,服药1个月内无发作率达80.4%,可看出医师对于癫痫病的诊疗水平有所提高,但成人患者发病2年内就诊率仅为约46%,因此患者对于癫痫的认知仍需进一步提高。且在本次研究中,通过手机APP实现了医生对于患者的日常管理,使医师掌握了患者的病情发展,并且可及时与患者联系,调整治疗方案。本研究为未来规范癫痫病患者的治疗及日常管理提供了参考。In order to improve the epilepsy management and treatment of Hebei province,improve the life quality of epilepsy patients.Hebei Association Against Epilepsy start a multicenter-clinical trial about the diagnosis,medicine treatment and effect of epilepsy through mobile phone APP.The data collected by health management APP shows that the diagnosis rate of epilepsy syndrome has enhanced from 21%to 39%within six months;also 80.4%of patients have got seizure-free within the first month of treatment.Therefore,the diagnosis and treatment of epilepsy in Hebei province has been improved.However,only 46%of adult patients have been hospitalized within the first 2 years of seizure onset.Therefore,patients need further education about epilepsy in the future.In this trial,the daily management of patients by doctors has come true through the use of mobile phone APP.Through the mobile phone APP,doctors achieved the real-time supervision of disease progress and adjustment of the treatment.This trial provide evidence for future treatment and daily management of epilepsy patients.

关 键 词：癫痫 手机APP 管理 

分 类 号：R742.1[医药卫生—神经病学与精神病学]