SMA患者主要照顾者心理弹性调查及相关因素分析  

Investigation on Psychological Resilience of Main Caregivers of SMA Patients and Analysis of Related Factors

作　　者：叶敬花[1] 路新国[1] 郭晓翠[1] 胡波 王芳萍 YE Jinghua;LU Xinguo;GUO Xiaocui;HU Bo;WANG Fangping(Department of Neurology,Shenzhen Children's Hospital,Shenzhen,Guangdong 518038)

机构地区：[1]深圳市儿童医院神经内科,广东深圳518038

出　　处：《智慧健康》2022年第28期218-221,226,共5页Smart Healthcare

摘　　要：目的探究并分析脊髓性肌萎缩症(SMA)患者主要照顾者心理弹性及其相关因素。方法选取2018年1月-2021年8月深圳市儿童医院接收的40例SMA患者的主要照顾者(n=40)为研究对象,所有入选照顾者均行一般资料分析和心理弹性量表(CD-RISC)评估,并采用多元Logistic回归分析影响SMA患者主要照顾者心理弹性的相关因素。结果SMA患者主要照顾者CD-RISC自强、坚韧、乐观及总评分分别为(22.08±4.34)分、(36.39±7.61)分、(9.74±1.61)分、(58.69±11.37)分,心理弹性总评分较低;不同性别、年龄、照顾时间、自我感觉健康情况、职业状况、患者自理能力及应对方式CD-RISC评分存在明显差异(P<0.05),而不同文化程度CD-RISC评分无明显差异(P>0.05);多元Logistic回归分析显示,性别(OR=1.919,P=0.021)、年龄(OR=0.466,P=0.004)、照顾时间(OR=0.503,P=0.008)、患者自理能力(OR=1.902,P=0.015)、患者应对方式(OR=2.010,P=0.023)均为影响SMA患者主要照顾者因素心理弹性状态的相关因素(P<0.05)。结论SMA患者主要照顾者心理弹性水平较低,且受主要照顾者性别、年龄、照顾时间、患者自理能力及应对方式等诸多因素影响。Objective To explore and analyze the psychological elasticity and related factors of the main caregivers of patients with spinal muscular atrophy(SMA). Methods The main caregivers(n=40) of 40 SMA patients received in our hospital from January 2018 to August 2021 were selected as the research object. All selected caregivers were evaluated by baseline data analysis and psychological resilience scale(CD-RISC), and the related factors affecting the psychological resilience of the main caregivers of SMA patients were analyzed by multiple logistic regression analysis. Results The CD-RISC self-improvement, tenacity, optimism and total scores of the main caregivers of SMA patients were(22.08±4.34),(36.39±7.61),(9.74±1.61) and(58.69±11.37), respectively;there were significant differences in CD-RISC scores among different gender, age, care time, self perceived health, occupational status,self-care ability and coping style(P<0.05), but there was no significant difference in CD-RISC scores among different educational levels(P>0.05);multiple logistic regression analysis showed that gender(OR=1.919, P=0.021), age(OR=0.466, P=0.004), care time(OR=0.503, P=0.008), patients’ self-care ability(OR=1.902, P=0.015) and patients’ coping style(OR=2.010, P=0.023) were the relevant factors affecting the psycho elastic state of the main caregivers of SMA patients(P< 0.05). Conclusion The mental resilience level of the main caregivers of SMA patients is low, which is affected by many factors, such as gender, age, care time, self-care ability and coping style of the main caregivers.

关 键 词：脊髓性肌萎缩症 照顾者 心理弹性 相关因素 

分 类 号：R744.8[医药卫生—神经病学与精神病学]