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作 者:王新华[1] 任尉华[1] WANG Xinhua;REN Weihua(Department of Pediatric,the First Medical Center of the Chinese People’s Liberation Army General Hospital,Beijing 100853,China)
机构地区:[1]解放军总医院第一医学中心儿科,北京100853
出 处:《中国医学伦理学》2023年第7期724-729,共6页Chinese Medical Ethics
基 金:北京市自然科学基金“mTOR通过UHRF1/DNMT1通路调节NR3C1甲基化在婴儿痉挛发生中的作用机制研究”(7222187)。
摘 要:目的探讨学龄期儿童患者在住院期间的个人需求和主动参与治疗决策沟通的意愿。方法研究依据文献复习归纳整理出包含11个问题的访谈提纲,采用面对面的方式对学龄期儿童患者进行访谈,将访谈反馈的内容进行归纳总结。以Bronfenbrenner’s生物生态模式和以儿童为中心的护理方法为指导,对受试者住院期间的个人需求情况及主动参与治疗决策沟通的意愿进行分析。结果选取2022年1—4月间住院学龄儿童患者40名参加本研究,男童27例(67.5%)、女童13例(32.5%),平均年龄(11.8±3.2)岁。采取面对面的方式完成访谈,并对结果进行归纳总结。访谈结果总结出的主要内容包括:患儿对父母的需求、患儿对医护人员的需求及患儿对住院环境的需求三大类。结论学龄期儿童能够表达他们住院期间的各种需求和积极参与治疗决策沟通的意愿。学龄期儿童需要提供适合其年龄的机会来参与共同决策,以支持他们的合理需求。Objective:To explore the individual needs and the willingness to actively participate in treatment decision-making and communication among school-age children during hospitalization.Methods:Using the interview outline containing 11 questions summarized based on literature review,face-to-face interviews were conducted with patients of school-age children,and the contents of the interview feedback were summarized.Guided by Bronfenbrenner’s bioecological model and child-centered care methods,the subjects individual needs and willingness to actively participate in treatment decision-making and communication during hospitalization were analyzed.Results:A total of 40 hospitalized school-age children from January to April 2022 were selected,including 27 males(67.5%)and 13 females(32.5%),with a mean age of(11.8±3.2)years old.Face-to-face interviews were conducted and the results were summarized.The main contents summarized from the interview results included children's needs for their parents,medical staff,and the hospitalization environment.Conclusion:School-age children were able to express their various needs and willingness to actively participate in treatment decision-making and communication during hospitalization.School-age children need to be provided age-appropriate opportunities to participate in decision-making to support their reasonable needs.
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