青少年癫痫患者自我管理的最佳证据总结  

Summary of the best evidence for self-management of adolescent children with epilepsy

作　　者：王芳萍 叶敬花[1] 田小琴[1] 孙琳琳 郑萌萌 WANG Fangping;YE Jinghua;TIAN Xiaoqin;SUN Linin;ZHENG Mengmeng(Department of Neurology,Shenzhen Children's Hospital,Shenzhen 518038,China)

机构地区：[1]深圳市儿童医院神经内科,深圳518038

出　　处：《癫痫杂志》2024年第3期234-239,共6页Journal of Epilepsy

基　　金：深圳市医学重点学科建设经费(SZXK033);广东省高水平医院建设专项经费。

摘　　要：目的 旨在全面检索并汇总青少年癫痫自我管理的最佳证据,以便为临床医护人员和相关决策者提供参考。方法 通过检索Cochrane、全球指南协作网(GIN)、苏格兰院际指南网(SIGN)、Joanna Briggs Institute(JBI)、NICE、RANO (加拿大安大略护士协会网)、UpToDate、BMJ、医脉通、PubMed、国际抗癫痫联盟、中国知网、万方数据库等数据库和网站,收集了从建库至2023年4月18日与青少年癫痫自我管理相关的各类文献,包括临床决策、临床指南、证据总结、专家共识、系统评价等。4名研究者被邀请对检索到的指南进行质量评价。剩余文献则由2名研究者独立筛选和评估。基于专业人士的建议,对符合条件的文献进行了数据提取和分析。结果 共纳入9篇文献,包括3篇临床指南、3篇专家共识和3篇系统评价。从以下8个方面对文献中的证据进行了总结:自我管理启动时机、监测管理、心理管理、创新自我管理模式、信息与支持、药物管理、日常生活管理和随访管理,最终归纳出了34条最佳证据。结论 本文为医护人员提供了青少年癫痫自我管理的最佳证据,指导他们通过循证的方法为青少年癫痫患者提供自我管理的教育和咨询,旨在帮助他们增强自我管理技能,减少癫痫发作频率,降低医疗服务与保健成本,并提升生活质量。Objective This article aims to comprehensively retrieve and summarize the best evidence for the self-management of epilepsy in adolescents,so as to provide a reference for clinical medical staff and relevant decision makers.Methods We systematically searched Cochrane,Global Guidelines Collaboration(GIN),Scottish Interhospital Guidelines Network(SIGN),Joanna Briggs Institute(JBI),NICE,RANO(Nurses'Association of Ontario,Canada),UpToDate,BMJ,Medical Maitong,PubMed,International League Against Epilepsy,China National Knowledge Infrastructure,Wanfang Database and other databases and websites.All kinds of literature related to the self-management of epilepsy in adolescents were collected from the establishment of the database to April 18,2023,including clinical decision-making,clinical guidelines,.Evidence summary,expert consensus,systematic review,etc.Four researchers were invited to evaluate the quality of the retrieved guidelines,and two researchers independently screened and evaluated the quality of the remaining literature.According to the opinions of professionals,data extraction and analysis were performed on the literature that met the inclusion criteria.Results A total of 9 articles were included,including 3 clinical guidelines,3 expert consensus and 3 systematic reviews.We summarized the evidence in the literature in the following 8 aspects:Self-management initiation timing,monitoring management,psychological management,innovative self-management mode,information and support,medication management,daily life management and follow-up management.We identified 34 best pieces of evidence.Conclusions This article provides health care providers with the best evidence for the self-management of adolescents with epilepsy,guiding them to provide self-management education and counseling for adolescents with epilepsy through evidence-based methods,helping them to improve self-management ability,reduce seizures,reduce health services and healthcare costs,and improve quality of life.

关 键 词：癫痫 青少年 自我管理 自我护理 证据总结 

分 类 号：R742.1[医药卫生—神经病学与精神病学]