家庭抗逆惯习:理解末期病情告知文化语境的一个理论工具  

Family Resilience Habitus:A Theoretical Tool for Understanding the Cultural context of Terminal Illness Disclosure

作　　者：刘谦[1] 许可[1] LIU Qian;XU Ke

机构地区：[1]中国人民大学社会学院

出　　处：《湖北民族大学学报(哲学社会科学版)》2025年第1期23-33,共11页Journal of Hubei Minzu University:Philosophy and Social Sciences

基　　金：阐释党的十九届四中全会国家社科基金重点课题“中国特色社会主义普惠性安宁疗护体系建设研究”(20AZD070);清华大学自主科研计划文科专项课题“中国临终关怀多样性研究”(2022THZWJC27)。

摘　　要：末期病情告知作为临终过程的关键环节,深刻影响着患者临终阶段的家庭互动。本文结合家庭抗逆力理论,并借用布迪厄“惯习”理论框架,提出“家庭抗逆惯习”的解释框架。通过三个典型案例的呈现与分析,可以看到末期病情告知是镶嵌在整个家庭面对生死压力实践中的重要一环。家庭抗逆惯习所蕴含的资源、组织与信念系统,不仅在病情告知环节得到展现,而且生动反映了该家庭曾经的资源状况、权力关系等,并一如既往地贯穿于整个临终照护过程。家庭抗逆惯习反映了家庭在压力中的实践惯性,具有整体性、历史性与表达性。这一理论视角的提出有望助推临终事件中对家庭主义文化底色的关注,挖掘家庭内部力量,促进末期病情告知的文化自觉。As a crucial element in the terminal phase,the disclosure of illness profoundly influences the family dynamics during patients’end-of-life period.By integrating the theories of family resilience and Bourdieu’s habitus,the paper proposes an explanatory framework for family resilience practices.Through the presentation and analysis of three typical cases,it becomes clear that the disclosure of terminal illness status is an important element embedded in the family’s overall practice of facing the pressures of life and death.The resources,organizations,and belief systems inherent in family resilience habitus are not only evident during the disclosure of illness status,but also vividly reflect the family’s historical resource conditions and power dynamics.Throughout the entire end-of-life care process,these elements consistently play a significant role.Family resilience habitus reflects the practical inertia of families under stress,characterized by its holistic,historical,and expressive nature.This theoretical perspective aims to encourage various stakeholders in end-of-life events to associate local family values with the disclosure of terminal illness status,uncovering internal family strengths and promoting cultural awareness surrounding the disclosure of terminal illness.

关 键 词：末期病情告知 家庭抗逆力 惯习 

分 类 号：R-05[医药卫生] C913.11[经济管理]